Tinnitus : Can anyone give me any help... - Fibromyalgia Acti...

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Tinnitus

aura2 profile image
9 Replies

Can anyone give me any help on how to deal with tinnitus?

The noice in my ears is driving me insane !

I have had fibro for 28 yrs and tinnitus the last 5/6 years .

I try the distraction methods and they have worked in the past but not for the last few weeks .

Thank you x

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aura2 profile image
aura2
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9 Replies

Mines the same it's really loud at the moment. i have found its gets worse when Im not feeling well which is pretty much all the time. I wear hearing aids and it does help but only if there's noise in the room like a radio or Tv. Its so horrid and I sympathise with you . Sometimes i have to have the volume up so loud to drown the persistent screeching

bluebell99 profile image
bluebell99

Hello, how distressing that is for you, especially as you are unable to get on top of it at the moment.

I am not familiar with tinnitus but a friend has it very badly and there are days where she really struggles.

Are you under the care of your doctor or hospital? If so, perhaps they could reassess you and give you different medication or aids to limit the noise.

If you look to the right of your post, you will see Related Posts, where other members have told of their experiences, (you may need to change to landscape if using a phone)

You could also type tinnitus in the search box, top right.

I am sorry I have not been much help to you, I do hope you find a solution soon.

Kay

rosewine profile image
rosewine

I've Unfortunately had this complaint since I was diagnosed with fibro which is 7 years back now. I have noticed it is worse if I am stressed or when I am worse than usual. My GP told me to mistuned the radio so there is what he called white noise as it helps block it out..

My friend who had it severely and as a consequence started to get bad depression had a masking hearing aid under the NHS. She wore it for about a year and it seemed to retrain her hearing and she only suffers very mildly feommit now.x

aura2 profile image
aura2

Thank you for your replys .the stress bit makes real sense . I recently had an operation to remove my gall bladder also found out my husband has a problem with his heart . But on the bright side my granddaughter is getting married this weekend and at one point thought we may of been unable to go as it is 150 MLS away.

Even when I meditate the noice is still very loud .

I have an appointment with my GP on Thursday I will ask to be referred about hearing aids .

Dizzytwo profile image
DizzytwoModerator

Hi there aura2 I am sorry you suffer with this distressing illness on top of the fibro it must be horrendous to say the least. Glad your going to see your GP please keep us updated with how you get on.

Congratulations to your granddaughter I hope you have a wonderful time i'm so glad you could go. xx

Mo

TheAuthor profile image
TheAuthor

Hi aura2

I am so genuinely sorry to read that you are experiencing Tinnitus problems and I have pasted you a link to the NHS Choices cache on treatments, so I truly hope that you find this useful:

nhs.uk/Conditions/Tinnitus/...

I am also so genuinely sorry to read about your husbands heart problem and I sincerely hope that everything goes well for him. Good luck to your granddaughter for her wedding and lets hope it is an absolutely wonderful day for all concerned.

I want to sincerely wish you all the best of luck and please take care of yourself my friend.

All my hopes and dreams for you

Ken

LorettaMaria profile image
LorettaMaria

I'm not sure if this link will work, but I've tried this method and it works.. sometimes it just reduces tinnitus or turns it off in one ear. I'm not sure if that is because it's painful to do so many repetitions. Horrible condition 🙁

Edited By Admin

If you would like this link please can you send a private message to LorettaMaria, as it is a Facebook link and not allowed on the open forum. Thanks for your understanding my friends. Admin.

Bacaloca profile image
Bacaloca

I have tinnitus which drives me crazy most days. I use a hearing aid in my right ear which helps quite a bit. I also use headphones to watch tv programmes on a tablet because trying to watch tv is just no good at all. I listen to music through headphones and even use a portable music player with ear buds to sleep at night with calming nature sounds playing. I do avoid the water sounds though or I have to keep getting up to go to the toilet.

I hope you find a way to cope. xx

aura2 profile image
aura2

Thanks to you all got your support and helpful hits .I am taking them all on board. I am writing a list for my GP ready for when I see him on Thursday .

Bacaloca ..I wear headphones to watch TV and listen to soft music .i was wondering if they were making the noises worse ? I also have light music playing for 2 hours while I drift of to sleep.

Thanks again folks you are all great .

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