Pip nonsense

For many years I had full disability for life then 2 years ago I lost my motability and full disability down graded but nothing had changed but I have finally diagnosed with chronic fybromyalgia and apparently I have had it for many years I am suffering badly with it in my hands feet and severe pains all over my body does chronic fybromyalgia count towards reclaiming my full disability as I cannot work much more many thanks all

11 Replies

  • Hi Comon01 welcome to our wonderful forum ☺ I'm sure you will come to find the forum invaluable in chatting to others who are going through the same experience as you, talking to others at different stages of their lives with Fibro and learning from their experiences.

    It does help with the whole process and I wish I had found the site years ago. I have had Fibro for nearly 30 yrs and I'm still learning about it, like we all are.

    it is irrelevant what you have wrong with you my friend, but it's how your illness makes you feel & how it effects you. You are not eligible for pip because you have Fibro or arthritis etc. It's how dibilitating it is.

    Please do go look at the mother site where you will find all the information you need and lots of useful links on Fibro and I look forward to chatting to you on the forum.


    Peace, luv n light

    Jan xx

  • Many thanks for your kind words

  • Hi comon01

    Welcome to our lovely i wont go through details as you already have them of our lovely janet28.

    Sorry your washed out hun it does drain us all at times.

    You been working hard so hope you get some pain free rest now.

    Keep sharing i am sure you will get plenty of support from our great members.


  • Hi yes it gets you down more times down than up for some time but as my lovely GP says I have gallows humour and so the darker it gets the more I fight but I must admit after 35 year's of being unwell and I am 53 so I suppose I still have some fight left but dark days

  • They moved the goal posts. I dont know when you last applied, but if it 6 months or more, no reason not to try again. When you claim perhaps worth getting some help, eg Citizens Advice Bureau. Not so much your diagnosis, but how your condition impacts on your life. So your feet, and how far you can walk unaided or walking with an aid (frame/stick) without severe pain. Your hands, and how that prevents you from doing everyday things like cooking, washing, dressing yourself (buttons etc.), and maybe your arms, or neck, shoulders, back, pain levels, fatigue and if you have sleeping patterns affected and how that would impact. They award points according to level of difficulty. Dont know whether it would be worth looking at applying for PIP, and if unable to work ESA. Be good to get some help though. Good luck xx

  • Many thanks for your kind words

  • I don't know if you will get full disability but you should be able to claim PIP for Fibromygia The forms are differcult to fill in so you could go to citz Advise The main thing is that you have been diegnosed and remember you can't walk over 50 mtrs which is Likly to be the truth plus you would need plenty of back up Docters letters hospitial etc Ken is pretty good at this stuff Good luck

  • Hi Comon01

    I sincerely hope that you are feeling as well as you possibly can be today? Welcome to the forum and it is wonderful to make your acquaintance.

    I am so genuinely sorry to read about your DLA, and as the others have said, PIP is paid out depending on how your disability affects your day-to-day living. The CAB have a wonderful cache entitled: Help filling in your PIP claim form and I have pasted you a link to this below:


    We also (FMA UK) have our own benefit adviser and her name is Janet and I have pasted you a link to her contact details below. The phone number is a freephone number:


    I want to sincerely wish you all the best of luck and please take care of yourself my friend.

    All my hopes and dreams for you


  • Many thanks for your kind message

  • Check out the Benefits & Work site. They have downloadable guides for members (not expensive) and a forum full of advice.

  • Yes

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