fybromyalgia new member

[lottie56]

Hi, I have had this annoying condition for many years, most of which were undiagnosed. I find there is total ignorance about this syndrome and i really arent sure if it exists myself. I do know that whatever it is , it is dibilitating and ruins my everday life, i have had a particularly painful weekend, hence finding on line help.

[Hidden]

Welcome it can be very frustrating at first feels like you have a labell but when you're talking to other insame position you realise your not alone there are pinned articles to help on home page take a look support is always available good luck

[BlueMermaid3]

Hello lottie56

Welcome to the forum

I have to say that you sound fed up to the back teeth and I can't blame you!

I was diagnosed with Fibro and ME in 1980 and the ignorance I have come across regarding these conditions has been astounding.

I was just saying the other day that I have my doubts too that a condition can give you so much pain and fatigue.

All of our members have Fibromyalgia and many of us have other conditions to contend with as well.

We have a wonderful bunch of members who are more than happy to share their experiences with you.

I would highly recommend that you look into locking your posts, Just so that you know unlocked posts are open to the whole internet whereas locked posts stay within our forum.

Here is a link to an easy to follow guide on how to do this:

healthunlocked.com/fibromya...

Once again a very warm welcome and I look forward to chatting to you again.

Lu x

Administrator

PS I meant to ask whether you have ever been referred to a Pain Clinic? If not, it may well be worth asking your GP for a referral.

[bluebell99]

Hello lottie56 and a warm welcome to our friendly fibro forum where you can find help, advice, understand and support along with a chuckle or two to lighten the day.

Have you seen our Mother Site fmauk.org ? Here you will find a wealth of information including guides and links.

If you are finding that your doctor is not very knowledgeable about fibro or is dismissive, you can use a link to send a Fibro pack anonymously to your surgery.

It could be that you may need to change your doctor or even the surgery if you feel you are not getting support.

I suggest you ask for a referral to a Pain Clinic and perhaps ask your doctor to "tweak" your meds or try something different.

Fibromyalgia DOES exist and is indeed a recognised illness both by the NHS and DWP, and no it is not in your head

You have definitely come to the right place here and I do hope we will see you joining in around the forum.

Kay

[Janet28]

Hi lottie56 welcome to our wonderful forum ☺ I'm sure you will come to find the forum invaluable in chatting to others who are going through the same experience as you, talking to others at different stages of their lives with Fibro and learning from their experiences.

It does help with the whole process and I wish I had found the site years ago. I have had Fibro for nearly 30 yrs and I'm still learning about it, like we all are.

I look forward to chatting with you on the forum.

Peace, luv n light

Jan xx

[TheAuthor]

Hi lottie56

I sincerely hope that you are feeling as well as you possibly can be today? Welcome to the forum and it is wonderful to make your acquaintance. I am so genuinely sorry to read that you have had such a bad weekend and I truly hope that your pain has eased for you.

I want to sincerely wish you all the best of luck and please take care of yourself my friend.

All my hopes and dreams for you

Ken

[Trikki]

Welcome!! Hope you get as much help and support as I have...and laughs as well...much needed at times....x

[Lamly in reply to Trikki]

I feel desperate to engage with other people who suffer constantly and have continuous pain, I am quite a strong minded person and easygoing,but I do enjoy a good natter and a laugh, I always think a problem shared is a problem halved, I am so grateful for allowing me to join your forum, I also belong to another forum which is to help people wean off of Amitryptiline, which I have been on for fifteen years.