Fybromyalgia

Hi everyone

I've never done anything like this before so here goes!!. I'm 48 years old and was diagnosed with fibromyalgia roughly 6 years ago. I didn't know about it beforehand and being diagnosed was bitter sweet,a horrible debilatating illness that even now I find difficult to manage but a diagnosis all the same. Anyway I'm sure like many of my fellow sufferers i feel quite isolated at times so this group is a godsend. I will hopefully make some new friends on here.Thanks in advance to anyone taking the time to read this post.evie x

13 Replies

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  • Hi and welcome to this friendly site, I'm sure you'll make lots of friends on here we are all in the same boat so understand what you are going through, just join in , take care

  • Hi evie welcome - I have been on this site for a few months now and find it very helpful, friendly and informative - I know you will too. - Neese. ๐Ÿ˜Š๐Ÿ˜Š. x

  • Welcome to the forum Evie look forward to your future posts. I'd there is anything specific you want help with there is normally someone around who has had experience of some of the strange symptoms we have. The majority of us are not medically trained but we can all share our expertise.x

  • Hi there welcome to our club. Hope we can be of some help to you I'm sure we can. ๐Ÿ’‹

  • Sorry to hear you have felt isolated. I think most of us an say we felt like that a one time or another. This is a great forum, when you feel low just log in, there is always something on here that will make you smile, sending you best wishes. Izzy x

  • Hi

    I am new to just joined, I have read lots of good advice, I have RA and Fibro, I have my ESA assessment tomorrow, I have worked for the last 43 years and was only diagnosed in Feb 2016. I have had both hips replaced in 2011 & 2014 due to RA. I had never heard of fibro before and can't believe the change in me I am in constant pain all over and hardly sleep I am so tired and have no energy at all. My doctor has tried me on lots of different meditations and nothing seems to be working.

    Unfortunately due to my illness I lost my job hence being on ESA now, not sure how the benefit system works but from what I have heard its hard to stay on ESA due to fibro.

    Ps I did not type this due to my fibro, my friend did it for me.

  • Hi Evie

    You have a name I love, but welcome.

    I'm sorry that you're a fellow sufferer. I am sure you will be pleased you joined this site, as you will get lots of support, help, info and even a giggle.

    Fibro does make you feel isolated and there is only so much our loved ones can listen to or understand. That's why being on here is so goo, we understand and are in the same boat.

    I hope that it helps you and that you get a lot of friends too.

    Good luck and best wishes ๐ŸŒธ

  • Welcome evie, I like you am a newby and I like you and everyone in this group know how you feel we are more or less all in the same fibro boat . So we can all share our thoughts and pains togeather once again welcome and a pain free sleep xx

  • Hi Evie68,

    welcome to the Forum. Sorry to hear that you're feeling so poorly, and hopefully you can get some tips on here about managing pain. We're all different, so you'll find that what works for one, doesn't always work for another.

    If you haven't already done so, you can find a lot of useful information on our Mothersite, at fmauk/.org.

    You'll find a lot of friendly people on here, so please don't be shy in posting. There is usually someone around 24/7.

    Take care.

    GP. ๐Ÿ˜Š๐Ÿ˜Š

  • Hi Evie68

    I sincerely hope that you are feeling as well as you possibly can be today? Welcome to the forum and it is wonderful to make your acquaintance. I am so genuinely sorry to read that you also have Fibro and I want to sincerely wish you all the best of luck, and please take care of yourself.

    All my hopes and dreams for you

    Ken

  • Hi Evie68,

    Big welcome to our Fibro family.

    I have been diagnosed for two years now,and this site has been very valuable .

    We are a friendly lot,so please don't be worried to ask us questions. We all like to help,and as many have said, there is often someone around 24/7.

    Take care

    Jane. ๐Ÿ˜€๐ŸŒท

  • Hi Evie, welcome, I am sure you will make lots of friends and get sound advice, this is a very friendly forum, we have laughs, tears rants and more. Take care

  • Hello Evie and welcome. Sorry to hear that you have this nasty condition too, but I think you'll find lots of friends on here, plus helpful hints and advice. ๐Ÿ’๐Ÿ˜€

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