I'm a newbee: Hi I'm new to all this... - Fibromyalgia Acti...

Fibromyalgia Action UK

59,469 members66,515 posts

I'm a newbee

Iriefe profile image
12 Replies

Hi I'm new to all this!

After 7 years I've finally been diagnosed with fibromyalgia... Just wanted to know I'm not the only one!!!

Written by
Iriefe profile image
Iriefe
To view profiles and participate in discussions please or .
12 Replies
neesey1005 profile image
neesey1005

hi I got diagnosed after about 6 years - it takes a while doesn't it? - WELCOME to the fibro club - I guess you really don't want to join but sorry sometimes its compulsory - great support on here - Neese x

Iriefe profile image
Iriefe in reply to neesey1005

Thank you so much for responding to my first post. I'm not good at all at asking for support but think I may need it!

It's a shitter isn't it!

Iriefe x

neesey1005 profile image
neesey1005 in reply to Iriefe

yes it certainly is - I was diagnosed in the hospital by a neurologist after years of blood tests and other tests - even have it in writing ! but some doctors still tell you its in your head - don't listen to them - they haven't got a clue - good luck x

BlueMermaid3 profile image
BlueMermaid3

Hi there

Welcome to the forum :)

I can certainly tell you that you are by no means the only one! We actually have something like 27,000 members!

My best advice to you would be to learn as much as you possibly can about Fibromyalgia and how it affects you personally.

If you take a look at our mother site you'll find a whole load of information on there fmauk.org

All of our members have Fibromyalgia and many of us have other conditions to contend with as well.

I have Fibro, ME, Hypermobility Syndrome and osteoarthritis.

Please feel free to ask any questions you would like to and please join in any fun that is going on.

You will find that we are a very all inclusive group and you are very welcome to join in any conversations or fun that is going on.

We like to have a laugh when we can. It's a wonderful tonic.

Once again a very warm and I hope you enjoy being part of the forum :)

Wishing you less pain and more peace

Lu x

Administrator

Iriefe profile image
Iriefe in reply to BlueMermaid3

Thank you for your lovely welcome!

Iriefe xx

naturalnikki profile image
naturalnikki

:) welcome, and no you are not alone. There are a lot of nice people on this site and since some suffer differently than others we have found different approaches to bring relief. I agree with BlueMermaid3, listen to your body and see what you are experiencing and how different things affect how it feels. Figure you out, that is the only reason I am still functioning today. :) luckily I found this place and it really helped me figure myself out and received great advice from people. This site really is the best.

Good luck and feel free to ask questions about what you are experiencing with fibro, we are all suffering a little different, but there are lots of overlapping and I think there are things we mostly share.

Anyways rambling.

Takecare × × ×

Janet28 profile image
Janet28

Hi Iriefe welcome to our wonderful forum ☺ I'm sure you will come to find the forum invaluable in chatting to others who are going through the same experience as you, talking to others at different stages of their lives with Fibro and learning from their experiences.

It does help with the whole process and I wish I had found the site years ago. I have had Fibro for nearly 30 yrs and I'm still learning about it, like we all are.

As you can see, there are a few of us my friend, so your at the right place and I look forward to chatting to you on the forum.

Peace, luv n light

Jan ☺

PS. I advise you to lock your post to keep info safe from internet. Pls. follow this link to simple instructions .You will get more replies on a locked post too.

healthunlocked.com/fibromya...

Hartleyhare2 profile image
Hartleyhare2

Hi Irefe and welcome! I find this the best site on fibro by far and also the admistrators do a great job and helpful genuine people make it feel like home.

I thought I was bad with four to five years but you beat me! Lol

Best wishes

Patrick x

Trikki profile image
Trikki

Hi & Welcome.....You are so not on your own any more....hopefully you will find this group of friends will give you what I have been given and that is help and strength and laughs to cope with this rotten fibro...hope to talk again xx

Hi Irefe

I'm still waiting for a diagnosis but fibro has been mentioned a few times so I joined to find out more.

Everyone on this site is so kind and helpful. I am so glad i found it.

Welcome

Julie x

bluebell99 profile image
bluebell99

Hello Iriefe and a warm welcome to our friendly fibro forum where you can find advice, support, help and understanding, along with a chuckle or two to lighten the day.

You are definitely not alone here, look at the friends you have already made!

Kay

TheAuthor profile image
TheAuthor

Hi Iriefe

I sincerely hope that you are feeling as well as you possibly can be today? Welcome to the forum and it is wonderful to make your acquaintance.

I want to sincerely wish you all the best of luck and please take care of yourself my friend.

All my hopes and dreams for you

Ken

You may also like...

I'm so vexed at the physio

Anyways now I'm at pain clinc don't know if they could give me this. I know this will help me. I've...

Hello - I'm a new member!

Hello all, new to this site bubt glad to be here. I have have had a dreadful day today so I'm...

M.e or fibro? I'm not sure

Hi all. I'm new here. I've just received my appointment for my pip assessment (even though I asked...

Hello I'm new to this site.

some tests. I've suffered with fibro for over 10 years, and I'm still learning how to adapt. Hello

I'm new to the community

everyone, I'm a new member (I'm 56) and I have suffered fibromyalgia (when I was diagnosed it they...