Fibromyalgia Action UK

Noob here

Hi all just a quick intro,

My GP recently "advised" me I might want to check out this forum and a few other groups. He said it's good to get in touch with others in the same boat, very good fibro friendly GP I've been with on/off for 16 years (rare very non-judgmental to)

I have suffered from Fibro, as an underline problem to neuropathy for numerous years.

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Hi wispa1a

Welcome to the forum :)

I am sorry to hear that you have Fibromyalgia, but am very pleased that you have found us.

Even though you have had Fibro for a number of years, you may still find our mother site has some useful information fmauk.org

Just for the sake of internet security I have given you a link to an easy to follow guide to locking your posts.

If you still need some help, please don't hesitate to give me a shout and I will be more than pleased to assist:

healthunlocked.com/fibromya...

I joined the forum 5 years ago, and can honestly say that I have never looked back since then.

Even though I have had Fibro, ME, Hypermobility Syndrome plus other conditions for 36 years, I am still learning more about Fibro.

I very much hope that you enjoy the forum. I have made some wonderful life long friends since I have been here and I am sure that you will too.

Once again, a very welcome to the forum and I look forward to getting to know you better.

Wishing you much peace

Lu x

Administrator

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Thanks

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Hi your gp was right to advise you on come onto this directory we are a friendly bunch but more importantly we understand what pain you are going through I'm told my gp over this site and she said it's the best thing to do is chat with other people who suffer with fibro

So a big welcome to you

Bam ☺

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Thanks

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Hi wispa1a and welcome to our friendly fibro forum where you can find advice, support, help and understanding.

You are amongst friends here and it is good to know you have an understanding doctor who suggested our community.

Fibro comes in many guises and is often accompanied by other conditions. I think this is why it is so hard to treat as we all seem to suffer differing symptoms.

I do hope we see more of you around the forum.

Kay

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Hi wispa1a

I sincerely hope that you are feeling as well as you possibly can be today? Welcome to the forum and it is wonderful to make your acquaintance. I think it is wonderful that you have such a good doctor.

I want to sincerely wish you all the best of luck and please take care of yourself my friend.

All my hopes and dreams for you

Ken

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Thanks

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Hello wispa1a, Welcome to our very friendly group. You mention having neuropathy, have you ever had your B12 levels tested? I've found that my neuropathy got much better once my low B12 was treated.

MariLiz

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Regular MOT every 12 months checks these yes.

Never had any insufficiency as far as I am aware, anaemic a couple of time in the past but not B12.

My dad however who suffer's bad with neuropathy and carpal tunnel does have to take thiamine and is often tested low for B12

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It can run in families so it might be worth getting it checked on your next blood test. Ask for a printout of the results from your doctor too, we are entitled to that, although they may make a small charge for paper and ink. In the UK they only seem to think levels well under 200 should be treated, but lots of people can have symptoms when they're between 200 and 500. In Japan anything below 500 is considered low enough to treat.

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OK thanks for heads up.

My gp is great very empowering and very blunt when needed never personally charged for anything like letters or reports (Manager will if she knows).

I'm actually due for checks this month will bring b12 up. Thanks again

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Hope your check up goes well and that everything is OK? Only found out three years ago that my B12 was low, so I'm on a mission to let others know about it, 👍😊

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