First time on here! : Hi this is my... - Fibromyalgia Acti...

Fibromyalgia Action UK

59,343 members66,394 posts

First time on here!

Westiebabe profile image
10 Replies

Hi this is my first time on here. I was diagnosed with fibromyalgia about a year ago. I thought being on here might give me some help knowing other people know how I feel. I have pain all over, and am gutted that I have this after everything I've been through. To cut a long story short I had an accident 15 years ago where I dislocated my knee, and the bone went through the nerves. It took two years for nerves to heal to as good as they are going to be. I'm left with pain weakness and a dropped foot and a very unstable knee. Then I had excruciating pain in other knee and after two years of investigation found pain was coming from my hips. I had two hip replacements. I had a few good months and then fibro happened. I am so fed up with having pain! The worst being the tops of my arms, I cannot lift them up, sometimes I go to pick up a cup of tea and my arm gives way, does anyone else have this?

Written by
Westiebabe profile image
Westiebabe
To view profiles and participate in discussions please or .
Read more about...
10 Replies
Bambamsnan profile image
Bambamsnan

Hi and welcome I also feel pain in top of my arms when trying to lift things up allspice I can say is this site has been very good and helpful because we are all suffering from the same pain on here you can help moan and cry no one will think any less of you

Carol xx

peck profile image
peck

Westiebabe , Hi and welcome to a nice and friendly site!! I'm sorry to hear of all your pain besides FM.I believe you will enjoy our site as we also have lots of laughs!! Peck.🐤

neesey1005 profile image
neesey1005

Hi welcome to a great friendly site - I do not get the arm weakness mine is all legs, ankles , feet, lower back - but sometimes I get pain all over - on a bad day😩- it tends to move about - same as most of us - I guess - very hard to plan anything sometimes a bad day appears from nowhere - but not too bad today. - its sunny here !!!!🌞🌞🌞🌞Neese x

rosewine profile image
rosewine

Welcome Westiebabe to this friendly forum you ahve come to the right place for a chat and a bit of support. Have you had a chance to ahve a look at our mother site Fibromyalgia Action UK as there is a wealth of information on there about symptoms and different sorts of meds and therapies as there might be something of interest to you.

I get that in my hands and wrists rather than my shoulders I think I have picked up something safely and either I get a searing pain through them or suddenly it as though sensation is lost and the effect is just the same something dropped on the floor. It is so infuriating and as we know can be quite dangerous.

I know others on here have had alot of problems with shoulders and upper arms so I hope they can perhaps give some advice or support. Take care.x

BlueMermaid3 profile image
BlueMermaid3

Hello Westiebabe

Welcome to the forum :) You have found a wonderful place to come for help, advice, tips and humour too.

As you are fairly newly diagnosed you may like to have a look at our mother site for more information on Fibromyalgia fmauk.org

Fibromyalgia is tailor made to each person, and so we very much suffer in different ways to each other.

Are you taking any meds for your pain? If not, if maybe an idea to make an appointment to see your GP. Also, your GP can refer you for different things, some of which are Pain Clinic, Pain Management Clinic, physio, CBT (Cognitive Behavioural Therapy).

I very much hope that you will enjoy the forum. Everyone is incredibly kind, caring and compassionate.

Wishing you less pain and more peace

Lu x

Volunteer Administrator

stargirl47 profile image
stargirl47

Welcome westiebabe im sure you will enjoy the site all of us are here for each other and we all have the same problems cand pains to an extent so we know what each other is going through . And it doesn't seem to matter what time of day or night it is you will usually find someone on line to talk to . Wishing you a painfree day and a sleep filled night xx :-)

Hi love I know what you mean with arm I struggle and it awful and sometimes my arms are really heavy I also have weakness In my ankles and hands swollen painful knees taken care love and hugs jill xxx

Hi

I'm so sorry to read everything you've been trough and that now you have fibro.

I am sure that you will get lots of support and help from all the lovely people on this site.

I am right handed and do find that the pain in my right arm and hand, fingers is worse than my left. I don't know if that's the reason why, it's just my guess.

Like you sometimes I can't hold anything or wash my hair etc.

Are you on meds from your dr?

I use Volterol gel, heat treatment, gentle massage and take extra vits and magnesium.

Someone did suggest rubbing in magnesium oil, haven't tried it though.

Good luck and I hope you get something to help soon.

Best wishes 🌺

TheAuthor profile image
TheAuthor

Hi Westiebabe

I sincerely hope that you are feeling as well as you possibly can be today? Welcome to the forum and it is wonderful to make your acquaintance.

I am so genuinely sorry to read of your suffering and struggling and I want to sincerely wish you all the best of luck, and please take care of yourself.

All my hopes and dreams for you

Ken

Westiebabe profile image
Westiebabe

Thank you everyone for your comments . I'm on naproxen , tramadol and paracetamol. I use a tens machine, heat pads, heat cream. Bio freeze . I love my electric blanket if I'm in pain all over I lie down with that on and it does help me to sleep. I do find lots of differing opinions from people when I say have fibro and a lot don't seem as if they believe it actually is an illness which doesn't help me at all😞

You may also like...

new here first time blog

was diagnosed with fibro last august, it all started 3yrs ago with having to have a c5/c6 prolapse...

My first time on this site.

Just saying hi as I have been a fibromyalgia sufferer for 25 years and wanted to hear from others in

This is my first time on this site.

bad i have to take myself to bed which i hate having to do,but i am in so much pain,I also have...

First time

I have just found out that I have fibro, and I'm not sure if I should be happy or sad, I'm very...

does anyone on here stumble to left or right at times?

When my fibro is bad I use a stick and sometimes ,two but my arm and palms hurt me through the...