Hi, I'm new to posting so being my first post, I will quickly explain that I have had fibro for probably at least 17 years but only actually managed to get diagnosed for the first time this year! I have had test after test after test and they have always come back clear so last year after really pushing my GP and seeing several different departments for more tests at the hospital rheumatology finally told me I have 16 of 18 points and that I have fibromyalgia also I have a severe vitamin D deficiency which they are saying makes the pain worse, I not convinced that is all that I have wrong but all my tests are clear so that is the end of the investigation into my pain according to rheumatology.
I have also been diagnosed with depression, panic attacks, anxiety and 4 years ago hyperventilation syndrome!
From everything I have read and experiences from my aunt who also has fibro and was diagnosed several years ago I am under the impression that they are all linked and that the specialists blame everything that occurs after diagnosis on fibro!
I've been told by many doctors that antidepressants are supposed to help control the nerve pain, however with the 5 different types they have prescribed for me, none of them have worked but after being prescribed DHC Continus 60mg several years ago for pain I have found that this does help take the edge of the pain but does not in anyway take it away but just makes the really bad days a little more bearable.
Does anyone else suffer major sleep problems with fibro? Not specifically from pain but just not being able to sleep!
Just thought I'd share a little about my experience of fibro as I have now accepted that this is what I have and that I just have to get used to it and live with it as hard as it seems there really does not seem to be any long term help from specialists other than the usual eat well and sleep well to lesser the pain and fatigue.