Fibromyalgia Action UK

ESA

Morning all hope your all have a good day.

I just want to ask has anyone ever had esa write to their doctor before I have to speak to one of the practice partners before they will continue to write fit notes for me they gp was a locum really horrible as if I was wasting her time.

The advice at the job centre advice me to go back on esa I did the locum put me off as grieving it's not helpful my fibro had been hell she didn't write that up.

I really don't know what's going to happen.

Thanks of hearing me Hel52

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I had a letter from doc's asking me to make a appointment to discuss letter from job centre,I'm very lucky that I have a wonderful doctor who took the time to go through the questions and we filled them in together.

Make sure you try and get the best doctor who you can trust and put down everything that your being treated for and all your medicationsupport.

I hope everything goes really well for you and your esa assessment dose'nt put added pressure on you.

Sending you gentle hugs xxx

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Hei Bren876

Thank you I have a telephone appointment tomorrow never sure what time Sorry I just worry about everything at the moment.

Regards Hel52

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Hi Hel52

So sorry to hear you are going through this.

I would make an appointment with a different GP and explain you are there on the Job Centre's advice. If your GP surgery do not believe that fibro is a recognisable condition you can send a Fibro Information Pack from fmauk.org anonymously.

I have read that the DWP rarely ask for the GP report as it costs them £50 a time to do so.

This does mean that the onus is on you to get all available evidence from clinic letters, blood test results, xrays etc.

I hope it all works out well for you.

X

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Hi bluebell99

That's interesting it's cost DWP £50 I get the impression they are not very supportive regarding fibromyalgia I will get a pack sent to them I lost my dad it's been very difficult coping with my home life as well I get on with life as best I can I have told the doctors everything how it was makes good me feel.

I have a phone appointment tomorrow see what he says.

Thank you very much Hel52

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Hi Hel52 did you know you are entitled to look at your medical notes whenever you feel the need? you write in to practice manager who will then ask doctor, these days its printed off a modern pc programme as long as you have been with the practice more than 10 years, the old PCT who were banished kept our paper notes that doctors wrote on and filed. You will find out this way what has been "noted" and you can then ask for anything to be added, sadly you cannot ask for anything to be taken off as these are legal documents and only a court can have them altered. Maybe insist on seeing your own g.p next time even if you have to wait, at least you know your consultation will be documented correctly and your current situation dealt with better.

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Hi can-54

I have been with the practice 16 years I will think about it see what my doctor says tomorrow I know it can take a while to see medical notes.

RegardsHel52

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Bluebell99 you must be right about the charge to dwp because funnily enough when i failed my esa assessment my doctor asked why the hell are we filling these forms in and they don't take any notice of the facts..

I'm now going to the tribunal this Thursday feeling sick is an understatement..

Gentle hugs x

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Good luck with your Tribunal on Thursday bren876 . I hope that you have someone that can go with you.

Lu xx

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Good luck bren876 hope all goes well for you. Take care xx

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Good luck and I hope it goes well for you.

Hugs and kisses from Janet xxx

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Hi

Yes I went to my doctor a couple of weeks ago and there was a letter sitting on her desk, about me from the esa.

Now been waiting for the outcome, feel sick every time the postman comes.

Hope it all turns out ok for you.

Trace x

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Hi

I don't know what to say to say to my doctor when he calls tomorrow I'll be more anxious than ever.

I hope it works in your favour when the answer arrives

Regards Hel52

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Hi milo4 I just wanted to wish you all the best of luck with this my friend.

All my hopes and dreams for you

Ken

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Hi Hel52

I am so genuinely sorry to read this my friend, and I have not been through anything of this nature myself. I want to sincerely wish you all the best of luck with the outcome and please take care of yourself.

All my hopes and dreams for you

Ken

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Hi Ken

Thank you I spoke to my doctor this afternoon he did receive the letter from dwp he was filling it in said he was aware that the fibromyalgia anxiety depression and chronic back pain and fibro flare ups were making it's difficult for me he's happy to continue with the sick notes the locum doctor was not correct when she said she could write anymore it's all sorted for now I was so worried.

Thank you all for your support it's a great group .

Regards Hel52

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Hi my friend, that is such a relief to read, and I am genuinely delighted to hear this. I want to sincerely wish you all the best of luck my friend :)

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Thank you Ken sending hugs 🤗 Hel52

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:) :)

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I'm so happy that you spoke to a good doctor and that you can now rest without the worry...gentle hugs xx

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Thank you bren876

In future I will book appointments to see him he is my gp.

Just waiting for esa assessment grrr last year It didn't go well I didn't have the fibromyalgia diagnosed so scored no points.

Regards Hel52

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Awww thank you for all your kindness lol I'm now doing my home work to make sure i understand all the questions as brain fog normally takes over and the wrong answers always pops out.

So sorry that some of you are still waiting for letters to pop through the letter box and the stress it causes you it's a living nightmare.

Fingers crossed that your have good news and won't have to fight the dwp.

Sending you gentle hugs and good wishes xxx

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