Lost DLA

I don't post here often but I do read many posts.

Thought I would let people know that in the transition from DLA TO PIP I have had the mobility component withdrawn and am losing £70 a week. That's £55 loss of PIP and £15 loss of ESA due to losing mobility component of PIP.

I'm pretty p****d off about it, the mobility was what I needed help with most. I've requested a reconsideration. Shall see how it goes

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18 Replies

  • Hi Beckh , Sorry to hear what happened. I live in the US so I don't know what advise to offer but I wish you the best on your appeal.Best wishes and take care. Peck.🐤

  • Hi Beckh, that is terrible, I wish you all the best with reconsideration 🤗🤗 x

  • How disappointing for you....I wish you well with your appeal x

  • I have my assessment coming up anytime now, too from DLA to the infamous PIP. I too will do all I can to appeal if need be. And knowing my luck, there is a high probability I will get someone just out for some commission on my behalf!!!

  • Have you asked for a mandatory reconsideration? You have to do that before you can appeal. Try and find some one who can help you. A benefits advisor. Or, Try the turn2us website

  • Good luck

  • Good luck with it I presume you have asked for a copy of your assessment as it can be astounding what assumptions they can make without actually asking the vital questions. Let us know how you get on.x

  • You really need to fight this, there doing this to often hoping we're just except it, it's disgusting how there targeting the vulnerable, wishing you all the luck with it, don't give up xx

  • Hi I'm really sorry to hear that you lost your mobility, my sister lost her mobility and lost out on her mandatory appeal.. I'm waiting to hear about my changeover.but i don't have a date for it, my biggest worry is losing the mobility part of pip it seem's as if they're taking it away from everyone I've heard of more people losing mobility rather than care although every now and again someone does get both. Good luck with your appeal😜👍

  • I do hope you get it back again. It seems obvious now you have written it down, but I hadn't realised losing the mobility part of PIP meant you lost out on part of your ESA too.

    I suggest you speak to Citizens Advice, also Google for a Disability Advocate in your area.

    The government does have a set amount which they expect you to live on and you may find you are "topped up" with income support, or income related benefits. This will include still paying your Housing Benefit if necessary. Contact your local council or Housing Association to check.

    Our Benefits lady Janet may be able to help you, look for the link in fmauk.org

    Good luck for the Appeal.


  • Hi Beckh

    I am so genuinely sorry to read this, and I want to sincerely wish you all the best of luck with your mandatory reconsideration my friend. Please take care of yourself.

    All my hopes and dreams for you


  • Thanks all and I apologise for the swearing I should've worded more carefully.

    I'll let you know how the reconsideration goes.

    It's all too stressful.

  • I really feel your pain. I was transferred from DLA to PIP last year. On DLA I was high rate for care and mobility. On PIP I'm standard rate for both losing £256 per month as a result. I appealed the decision, but on the day I withdrew it following the advice of the Welfare Rights advisor with me otherwise I would have lost everything and all because I do my best to care for my 20 year old son who has Aspergers. I ended up having to go back to work and have ended up on long-term sick leave. I managed all of 5 weeks before my health was hit like a sledgehammer. That was October 2016. I am going to put in for a reconsideration to get the care element looked at again as I can barely do one household chore a day and have to spend most of my time bedridden. My housing association are now having to do further adjustments eg a perch for the kitchen, an extra handrail for the stairs and a grab rail for the bath. I'm also doubly incontinent and don't go over the doors unless I have someone with me. This situation is all too common. See if you have a Welfare Rights or Citizens Advice nearby. If you live relatively close to it, look up SHARP. They're based in Shiney Row.

  • You have to inform them if anything changes such as your condition/s get worse. So, that's a very valid reason for a reconsideration... You should also contact social services and have a care needs assessment done. Anyone can request this. You may well be entitled to have a carer coming in to help you. With personal care and housework. They then do a financial assessment. And, most likely you won't have to make a contribution. You may also be able to get help caring for your son, as well. Make sure your GP is fully informed of the change in your health and refers you to any specialists/consultants that may be able to help. And that your notes are updated.

  • Thanks so much for your reply. Some great advice x

  • I would also get in touch with the Occupational therapists. I think you do that through your council. Should be details on their website. You may be eligible for other adaptations, like a stair lift and a walk in shower. Or, wet room., etc. They can also provide things like a raised toilet seat, walking sticks or frame. And things to help in the kitchen. HA's won't provide larger adaptations. As they are to expensive. It can take a long time to get adaptions done. I know from experience!! A year to get my stair lift and 2 years to get my walk-in-shower. But has made a hug difference to my life. x

  • Hi Beckh, I have just lost the mobility part too. However, you can apply to your local authority for a blue badge if you have had one up to now, but not the allowance. I am in the process of doing so. Had difficulty with the on-line form - I got to the very last part where I had to upload my photo containing only 500pixels - dont know how to reduce the pixels. Tried but ran out of time, the form reverted to a blank one and I was severely p****d off. So have phoned and am awaiting a form through the post. Will not give up just yet.

    Hope your reconsideration is allowed. Good Luck and have a painfree day. Helen X

  • I too lost my mobility higher rate by 2 points, got standard care/mobility. I had a reconsideration with further evidence letter from my Dr. They said wasn't strong enough evidence!! My gp knows my conditions and physical abilities (lack of) more than anyone..crazy.

    The craziest thing is that the elements not allowed points for are the things documented within health officials stuff as part of my conditions. The assessor was a standard Nurse (obvious lack of knowledge) and the decision makers are non medical.... non knowledgeable of conditions medically. Dr's knowledge and evidence should not be able to be ignored as they are the experts.

    Others have said they are determined to withdraw high mobility and care on mass. Seems to be the case, heard of so many cases.

    Also anyone requesting a reconsideration..remember it can result in loss of what has been awarded, stay the same or be successful in more points.

    Sad situation, uncaring, and wrong.

    Rant over..tut xx

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