Is it normal!

Hello everyone,

I am a new member and a new Fibro. patient as well .. I wanted to ask if it is normal to feel just good and you can do basic things without feeling pain just as getting dressed , going to work, carry little things, and finally sleep well without anti-depression .. and all of a sudden you can't even stand up or move out of your seat and you can't use you hands even to take medicine ? Is it who we are ?

8 Replies

oldestnewest
  • Hi Angel2016,

    Fibro affects each and everyone of us differently. What might be possible for one person may not be what the next person can manage.

    The best idea is to pace yourself, if you are having a good day then try to do what you need to do but have plenty of rest. Don't over do it or you will pay for it the day after and for a few days too.

    Look at the mother site and I'm sure some of the admin will provide links and further advice as they are all so very helpful xx

  • Hello Angel2016

    Welcome to the forum :) I am sorry to hear that you are newly diagnosed to Fibromyalgia.

    It can be a very daunting and worrying time.

    On the forum we range from people who are newly diagnosed to people like me who have suffered with Fibromyalgia & ME for 36 years.

    If you take a look at our mother site, you will find a list of common symptoms of Fibromyalgia fmauk.org

    As Scottish-piglet has said, everyone experiences Fibromyalgia in very different ways.

    Some people have fairly mild Fibromyalgia and can carry on with their normal lives to the complete opposite end of the scale to people who are bed ridden.

    What you are describing is classic Fibromyalgia. Some days you can do things, others you can't.

    On "good" days we tend to race around doing as much as we can, knowing that we will pay for it the next day.

    Also, another thing to take into account is something that is known as a "flare". This is when all our usual Fibro symptoms (which differ from person to person) become acutely heightened.

    Flares can last days weeks or months and are usually triggered by some form of stress.

    My personal advice to you would be to learn as much as you can about how your Fibro affects you and try to learn to manage it as best you can.

    If you need any help navigating your way around the forum, give me a shout, and I will be more than happy to help you.

    Wishing you less pain and more peace

    Lu x

    Administrator

  • I'm so sorry you are going through this. I agree with the other two comments, about pacing and being careful not to cause a flare.

    I am not my fibro, that's for sure. I am a homeschool mom that refuses to let my fibro entirely control my life. I find that if I want to do something outside of my capabilities, I have to slowly, very very slowly progress myself to that place.

    Maybe one day I will lose my capabilities to fight, but that is not today. :)

    Keep living your life, I find help with stretching in the morning and night, massaging tight knotted muscles (which are pretty much all my muscles), juicing fresh vegs and fruit gives me strength and energy.

    And remember to increase activity slowly but steady. You're conditioning sore muscles. So treat them nicely. :) hopefully they will be nice back. :)

    Good luck×××

  • Hiya Angel2016 Welcome to the gang. I'm so sorry you have fibro. What you have discribed sounds normal fibro to me. Like you gave heard already we each differ in some ways but we all have most of fibro traits. I am lucky enough to not suffer with IBS but another condition called COSTACONDRITIS which is inflammation of the ribs and breast bone I have had 3 times in 4 years yet some sufferes never have it. Read as much as you can on fibro and start and keep a note of your days how they differ. What brings on a 'flare'..... But most of all the biggest thing you can do to help yourself is to accept fibro. May take you a while but fighting it didn't work for me. Don't give up but go with it when you go through the fatique. Take care xx

  • Hello Angel2016 and welcome to our friendly fibro forum where you can get advice, support and help with all things fibro as well as having a chuckle to lighten the mood.

    What you are describing is what a lot of our fibro friends can relate to, but as BlueMermaid3 says we are different in that some can hold down a full time job and others struggle to leave the house.

    If you google "The Spoon Theory" this will give you some idea of what pacing is all about and can be very useful to think of your day ahead in this way.

    I am glad you have found us and look forward to seeing you around the forum.

    Kay

  • Thank you all I really appreciate your support and recommendations .. It's great to finally find people who know where exactly I am coming form with no need to exert any effort or to explain myself.

    Wish you all relief and peace

  • Hi Angel2016 and welcome to our wonderful forum ☺I'm sure you will come to find the forum invaluable in chatting to others who are going through the same experience as you & talking to others at different stages of their lives with Fibro & learning from their experiences.

    It does help with the whole process & i wish I had found the site years ago. I have had Fibro for nearly 30 yrs & I'm still learning about it, like we all are.

    I'm sorry you are in so much pain and i see you already have some good advice which I can't really add to, just wanted to say Hi.

    Can I also advise you to keep your information safe from the internet and lock you post. Follow this link for simple instructions

    healthunlocked.com/fibromya...

    Peace, luv n light

    Jan x

  • Hi Angel2016

    I sincerely hope that you are feeling as well as you possibly can be today? Welcoem to the forum and it is wonderful to make your acquaintance. I have to agree with all of your other respondents as Fibro really does affect us all differently so this is probably normal for your Fibro. As the others have said pacing yourself is probably the best idea.

    I want to sincerely wish you all the best of luck, and please take care of yourself.

    All my hopes and dreams for you

    Ken

You may also like...