Where do I begin: Another day rolling... - Fibromyalgia Acti...

Fibromyalgia Action UK

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Where do I begin

Disheartened profile image
5 Replies

Another day rolling on from restless legs throughout night .after 15 years ten of which diagnosed I still mentally fight dreaded fibro . isolation from life beyond my front door is the norm . mobility often impossible through pan in back/ hips . Joly fed up. So snugge up to my puppy's for reminder they need my Care and love .

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Disheartened profile image
Disheartened
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5 Replies
Janet28 profile image
Janet28

Hi Disheartened I see you have recently joined so I would firstly like to welcome to our wonderful forum ;-) I'm sure you will come to love it as we all do. It really helps to be able to interact with others that are going through or been through the same experiences as yourself.

I'm sorry you are really suffering with pain and your legs at the moment, I do feel for you because I also have RLS & it is so horrible and really interferes with sleeping, I have to get out of bed to stand & feel like I need someone to sit on them. I also have hip & back pain like you & many other of our fibro friends.

As you say, a lot of us get very isolated because of mobility and I think everything is always worse in the winter and I always dread it and wonder if I can get through it without being to ill. This is where the forum is so great and a life line for people that are not getting out to socialize. Have you got a mobility scooter ? Have you looked on the Mother Site fmauk.org to see if there are any groups or clubs in your area ?

I look forward to chatting with you on the forum.

PS

. I advise you to lock your post for your safety as unlocked posts are open to the internet, I have pasted a link to easy guideline on how to do this yourself in future. healthunlocked.com/fibromya...

Peace, luv n light

Jan x

Disheartened profile image
Disheartened in reply to Janet28

Hello Janet . thankyou for taking time to reply . I do have mobility scooter for when am able to lift it in and out of my front door . often suffering afterwards .my muscles seem to feel torn if I do to much . so many restrictions to many to moan about .lol . we are all same or similar .have learned to respect my limitations with only occasionally rebelling .knowing rendered immobile and acute pain .its a vicious and unfair condition .

Hi there, welcome on board, most of us on here are experiencing similar to you. if you could get yourself off to see your g.p and ask for some hydrotherapy or even get yourself to a local swimming pool that has a Jacuzzi this is a good remedy for restless leg syndrome, Ive been doing this for 15 years now, I meet nice people here on the Forum and at the hydro pool. I hope some one out there is aware of your situation and the only way to get yourself mobile is to start with a home visit from your g.p if you can,t get to surgery. You would also be able to ask for some pain clinic sessions to ease your back/hip pain too.. Its all out there for you if you can find some get up and go- I know that's hard but good luck

TheAuthor profile image
TheAuthor

Hi Disheartened

I really am so genuinely sorry to read of how you are suffering and struggling and I want to sincerely wish you all the best of luck, please take care of yourself.

All my hopes and dreams for you

Ken

angiesmith50 profile image
angiesmith50

Hiya Disheartened welcome to the gang. So sorry your going through so much pain. Your right it is vicious and unfair. I too find magnessium oil helps. I've had restless legs for along time well before fibro but amitriptlyne helps me alot. Hope you find something that works for you. Take care xx

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