I really hope the climate change will mean the U.K.'s warm every day. I'm sick of pain, discomfort & trying to hide my tears from my son.

[f1bR0Ru3]

Hi All,

I want my fibromyalgia to be reduced by the climate change making the uk warm every day. I am sure I am not the only one who wishes to have my rest and peace from the pain and discomfort and from trying to hide emotions as they only upset those around you and increase your pain and discomfort anyway.

I am sitting here wishing to sleep but knowing the weather and my body is again going to stop me. I have had involuntary spasms for 3 weeks 24/7 since visiting the assessment centre for ESA. I got a letter today saying they are putting me on the support group as they don't think I am capable of work. I just wish the way I got it hadn't had to happen as I am still suffering really badly now as a result.

I hope others aren't suffering as badly as me.

[BlueMermaid3]

Hi there

I have battled Fibro, ME, PTSD, depression etc for 30 years.

It took me an 18 month battle and a Tribunal to be put into the Support Group after 34 years of hard graft.

At one point I had 3 jobs to make ends meet.

I do wonder whether pushing myself for all those years has made my Fibro as bad as it is.

I am awake (again) due to pain and I couldn't agree with you more about the warmth.

If I was younger I would emigrate to somewhere warm all year round.

Thinking of you.

Lu xx

[f1bR0Ru3 in reply to BlueMermaid3]

I used to live abroad in the Caribbean with my long term partner and best friend. During that time I hadn't been diagnosed and didn't know there were any problems except that I had involuntary spasms and had damaged my back while working over there. We both came to England for my grandmother's funeral and while I was here I discovered I was pregnant. Two days before I was due to fly back I began bleeding and they thought it might have been an ectopic pregnancy so had to remain and left my partner go back alone. It was so heart wrenching. We got over that scare but the bleeding continued so then I was told a long list of things I couldn't do, including flying home. As the pregnancy progressed my health worsened, but the health professionals kept saying the safest place for the baby is in you, and as soon as you have it you'll be fine.

I had the baby and he was fine although going through cold turkey due to the amount of different painkillers I had to take to alleviate pain and try and increase my mobility. I had four midwives, usually you have one or two. I remember trying to move from one part of the hospital to another on a Zimmer frame while one midwife was squeezing my hips and another was trying to administer gas and air. The only relief was that the baby came out quickly.

After the baby was born I still struggled with my mobility, and due to the previous words kept thinking it was my fault that I wasn't healing and recovering. I hate not being able to return home to the Caribbean, but was lucky to have such a wonderful mother who looked after me and my son and continues to do so to this day. My partner decided he'd had enough and found another. Now my son is six and he often does stuff for me which I should be doing as the mother and my mother does the rest.

I would love to return to a hot country as my symptoms would lessen then. My son has for three weeks in his life seen his mother being able to do more. He loved it and he could see that I would be able to work if I lived in a hot country.

[TheAuthor]

Hi f1bR0Ru3

I really am so genuinely sorry to read of how you are suffering and struggling and I sincerely hope that you can find some resolution to all of this. I genuinely hope that you can manage to get some sleep my friend, and please take care of yourself.

All my hopes and dreams for you

Ken

[f1bR0Ru3 in reply to TheAuthor]

Thank you for your compassion and for spending time to write to me. Sleep last night was nonexistent as my son isn't very well at present. Luckily my mother was able to get him some medicine this morning so sleep might be possible tonight for a bit, weather and pain permitting. I hope no one else is suffering as badly as me at present as I wouldn't want to even get it my worst enemy.

[TheAuthor in reply to f1bR0Ru3]

Please take care my friend

[pigsty]

I too hate the cold damp weather and the effects it has on my body.

Can't even hibernate due to the pain

Let's hope it's an early spring

Gentle hugs

[f1bR0Ru3 in reply to pigsty]

I live in the perfect place for cotton which thrived on cold and damp weather. Hibernating isn't an option for me either as I am a single mum. As I said previously luckily I have a wonderful mum, who retired for me to give me and my son care 24/7.

I hope for an early warm spring too. That's why I made the comment about climate change not because I wanted to destroy the earth.

[fenbadger]

UM. It's unpredictable but I worry about climate change. If we keep chucking pollutants in the air we breathe, will the other effects of fibro and our reduced resistance actually make things worse? there are positives. WE could grow tropical fruit in the UK but would you want the malaria mosquito as a neighbour? We may save billions on transport when the Arctic Ocean becomes navigable. But shipping is not the biggest polluter. I'm not just wanting to save the cuddly polar bears and puffins. I wonder if humanity could honestly cope. Look at the pollution related deaths in Mumbai (in the news recently).

I don't like the cold and damp. But I'm equally certain the effects of pollution don't help many conditions, fibro included.

BlueMermaid3 is right. Coping with other stresses cant help.

[f1bR0Ru3 in reply to fenbadger]

I wasn't wanting to destroy the earth, and yes I agree with you there would be a lot of bad things when the climate changes, I just wanted some relief and thought about the weather and then the climate change entered my head. I was full of my son being ill, my body killing and me trying to struggle from one room to the next and then thought this wouldn't be as bad if we lived in the heat.

[fenbadger in reply to f1bR0Ru3]

Sorry, that wasn't meant to be a rant, and I didn't say you did. I fully sympathise as a fellow sufferer. I just wonder if the consequences might be even more undesirable. Like you I would wish to be somewhere warmer and drier.

[f1bR0Ru3 in reply to fenbadger]

I understand what you mean.

[Nickyvn]

I'm glad I'm not the only one affected by this weather. I had a couple of good months over the summer and was feeling good - October came and all downhill. Am now wondering how I can get through winter if every day is going to be this painful Just want to hibernate in bed!!

[f1bR0Ru3 in reply to Nickyvn]

That's very true. I wonder the same especially as I have had involuntary spasms constantly for almost a month now. I keep thinking they are going but then they come back with avengenance. They started this time as a result of going to the ESA assessment. My doctor has reluctantly decided to refer me to a neurologist to see if they can help. My chronic pain psychiatrist thought they might be able to suggest something. They have also given me a low dose of medicine. If I could get them to stop it would be easier to get my body moving more freely as they are in my back, legs and arms.

I use heated wheat bags to try and reduce my pain and allow my body to give it the opportunity of trying to reduce my spasms. I also go for a massage and see an osteopath. They help to relax the body, although it's never totally relaxed.