Diagnosed with fibromyalgia - Fibromyalgia Acti...

Fibromyalgia Action UK

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Diagnosed with fibromyalgia

Sandyjr profile image
29 Replies

Hi I have recently been diagnosed with fibromyalgia and just wanted to say hello.

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Sandyjr profile image
Sandyjr
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29 Replies
Kitten-kat23 profile image
Kitten-kat23

Hello and welcome to the gang. How are you feeling today? 

Sandyjr profile image
Sandyjr in reply toKitten-kat23

Today is not a good day the pain is dreadful and I am just discovering the many different aspects of Fibromyalgia. Hoping tomorrow is a better day. Thank you for your welcome

GibboLu profile image
GibboLu

Hi and welcome. I was diagnosed yesterday. 

in reply toGibboLu

Getting a diagnosis is half the battle isn't it? Being listened to and understood is a big part of it all too and that's where this forum really helps :)

TheAuthor profile image
TheAuthor in reply toGibboLu

Hi GibboLu

I sincerely hope that you are feeling as well as you possibly can be today? Welcome to the forum and it is wonderful to make your acquaintance.

I am so genuinely sorry to read that you also have Fibro and I want to  sincerely wish you all the best of luck, and please take care of yourself.

All my hopes and dreams for you

Ken

treefrog12 profile image
treefrog12 in reply toGibboLu

GibboLu .... crazy fibro moment...when I first read your name my brain said to me 'GobbiLu' - welcome to the forum...hope I have not offended you by telling you this as we're all very friendly on here... honest :) Hope you're having a reasonable day xxxxxxx BTW - I'm a relative newbie too...diagnosed in March this year.

GibboLu profile image
GibboLu in reply totreefrog12

Haha it made me laugh. Having a fairly painful day today. I have to plod on and smile. 

treefrog12 profile image
treefrog12 in reply toGibboLu

Phew! Glad I made you smile :) take care xx

Sab123blossom profile image
Sab123blossom

Hi Sandy....I was diag last April and tam so glad to have found these friends on this site..I am sure it will be somewhere that you can learn a lot from, ..everyone especially the moderators are soooooo patient...repeating stuff for us as we discover this site, and try to deal with our own Fibro...all the best...keep on keeping on, 

Sandyjr profile image
Sandyjr in reply toSab123blossom

Thank you so much, I am glad that I have found this site

Sandyjr profile image
Sandyjr

Thank you so much 

Hi

Sorry to hear that you are a fellow sufferer.

I think you'll be very pleased that you've joined this sight as everyone is very helpful and kind. You can learn a lot, have a moan and get support, people post funny and cute things. I have been on it for about a month and was very low when I joined and felt so alone, I have had great support and it's given my spirits such a lift. I am really happy that I've joined 👍🤗

Keep reading up on fibro and keep going to Drs for help if you feel you need it. Most of all pace yourself and only do what you feel you can do. It's important to learn to relax.

Take care of yourself and I hope you feel a bit better soon.

Best wishes.

Sandyjr profile image
Sandyjr in reply to

Thank you so much

Hi Sandy, welcome to our wonderful friendly and informative forum.  I am so sorry that you have been diagnosed with fibromyalgia but you are in good company here :)

neesey1005 profile image
neesey1005

Hi welcome to new friends hope the diagnosis was not a big shock - neesex

Sandyjr profile image
Sandyjr in reply toneesey1005

Hi I don't think it was a shock as I have had symptoms for so long. In a funny way I felt relieved to get the diagnosis, to tell me that it was a real condition, if that makes sense.

rosewine profile image
rosewine

I would just like to say welcome to this friendly forum Sandy and GibboLu.  I look forward to your future posts.x

Sandyjr profile image
Sandyjr in reply torosewine

Thank you

Bambamsnan profile image
Bambamsnan

Hi and welcome to a very good site keeps you up beat and help and advice and the one other thing is every body is in the same boat 

Carol☺

BlueMermaid3 profile image
BlueMermaid3

Hi there

Welcome to our wonderful forum 😊  You have found yourself a bunch of caring, kind, compassionate people who all know how you feel. 

As you are newly diagnosed it would be a great help for you to have a look at our mother site for loads of information fmauk.org

I personally have had Fibromyalgia for over 34 years and have been a member of the forum of four years. 

My advice to you would be to take some time to get used to your diagnosis. Try to let the whole thing sink in before you do too much. 

Some of the things your GP can refer you for, depending upon the severity of your symptoms are physio, Pain Clinic, Pain Management Clinic, and others dependant upon where you live. 

If you take a look at the right side of your screed under Pinned Posts in blue there are simple steps to learn how to lock your post. 

If you should need some help, please let me know and I will be happy to lock it for you.

I have made some truly wonderful life long friendships here. I sincerely hope that you will too.

Wishing you less pain and more peace

Lu x

Admin Volunteer 

Sorebones profile image
Sorebones

Welcome to the madhouse! Seriously though, we all have Fibro and most have other medical problems on top. We have to keep smiling or we'd go nuts! 

I know what you mean about eventually getting a diagnosis. It's a double edged sword. Not the best thing to be told, but now you know what is wrong you can get on with dealing with it. 

Feel free to ask questions, have a moan or tell a joke. It's a good family to be a part of 🐸

Hilsam profile image
Hilsam

Hello and welcome, Sandyjr. Just want to echo what everyone else has said. It's a complex illness and it's so good to have somewhere where people understand that and support each other, Hilary

ryanbone10 profile image
ryanbone10

Hi Sandyjr ,

Welcome to our wonderful community forum. You've certainly found the best.

You'll find caring, compassionate dignified friends here anytime day or night.

Feel free to chat anytime.

Look forward to seeing you around!

Soft hugs,

Elizabeth xx

peck profile image
peck

Sorry to hear about your diagnosis but you have found the place you need yo be.We  have people to help and some to make you laugh like you probably haven't in a long while.Welcome and please do stick around!!! Peck🐤

Nelehnoddle profile image
Nelehnoddle

Hi ..me to .😕

TheAuthor profile image
TheAuthor in reply toNelehnoddle

Hi Nelehnoddle

I sincerely hope that you are feeling as well as you possibly can be today? Welcome to the forum and it is wonderful to make your acquaintance.

I am so genuinely sorry to read that you also have Fibro and I want to  sincerely wish you all the best of luck, and please take care of yourself.

All my hopes and dreams for you

Ken

TheAuthor profile image
TheAuthor

Hi Sandyjr

I sincerely hope that you are feeling as well as you possibly can be today? Welcome to the forum and it is wonderful to make your acquaintance.

I am so genuinely sorry to read that you also have Fibro and I want to  sincerely wish you all the best of luck, and please take care of yourself.

All my hopes and dreams for you

Ken

Treewade profile image
Treewade

Good morning and hello, and a very big warm welcome xxxxxx

Hi and Welcome, sorry to read you had a bad day, I hope today is much better for you. Take care.xx

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