What do you say?: Hi all,. I was... - Fibromyalgia Acti...

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Ladylucan profile image
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Hi all,. I was reading a post this morning about having stand alone illnesses. When you go to a different doc or on a hospital visit and they ask you if you have any symptoms do you reel of a list ? Or do you say fibromyalgia , etc etc ,. As a few times i have noticed that as soon as you mention Fibro they then carry on and one then even said to be 'oh well that means you have everything '. So I tried doing it the other way around putting others first but then again as soon as I mention Fibro they then kinda of look as if to say ' oh well , that explains it all then.' ( this does cover a few years by the way 😀) Do all docs think that once you have Fibro you 'have everything'?

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Ladylucan
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Rose54 profile image
Rose54

Hi

I think the problem is GPs and other medical professionals only deal with one problem at a time .

Their are lots of other illnesses that have multiple symptoms

So by the time they get through the list of symptoms dealing with one at a time .And nothing has improved they kind of give up as they don't know what else to suggest as they have tried all they are able too.

Rose

I know exactly what you mean our friend- for years I have been under the care of 2 rheumatologists- one who specialised in Ankylosing spondilitis and the other who has good knowledge of fibro/m.e/cfs both of these docs at different trusts. When I had apt, with A.S doc the number of students who attended my appt with great interest as it seems in the 1980,s 1990,s women didn,t get A.S it was a man illness!! Nowadays the number of ladies taking therapies with A.S just contradicts this theory. When I go to the other doc for fibro he insists on going over the days suffering from A.S and I get angry and remind him I am not here today for that! My physio at the A.S hospital greets me as "the only lady I have ever met with A.S" I tell him to spend time at the City hospital with the rheumatologist & physio,s there and update his learnings he is very out of date! The City doc and his physios have much more knowledge, they practice acupuncture, inject steroids, take hydrotherapy treatments!

TheAuthor profile image
TheAuthor

Hi Ladylucan

I sincerely hope that you are feeling as well as you possibly can be today? I understand this completely but from a different perspective. I have severe COPD due to a fixed airway, and whenever I go to an hospital or doctors appointment the first thing they want to know about is my breathing. Many a time I have joked, 'but doctor I am here because my head fell off please help me?' But they have absolutely no time for a sense of humour?

All my hopes and dreams for you

Ken

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