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Fibromyalgia Action UK

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Lady2 profile image
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Hi everyone I am new to this would just like to say hi I recently was told I have fibroymagia plus other medical problems

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Lady2 profile image
Lady2
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7 Replies

Hi Lady 2

It's nice to have you join us. Although, I'm sorry you have fibro.

We all seem to have other med problems with fibro and maybe this is why we get it?

We try to post helpful info, support each other and try to post some funny or interesting things too, to help keep everyone's spirits up. As with lack of sleep and the pain etc, many of us are on antidepressants and need a boost.

The mother page has good info on it and the NHS has a web page on fibro too.

This site has helped me no end and given me useful tiles I use every day. It also helps to make me feel less alone with the pain etc and more hopeful that someday someone will find a cure.

Have you been given meds?

Have you been referred to a pain clinic?

I cannot take the meds as I had bad reactions to them. I take extra vit d and magnesium - as fibro sufferers can be low on them and I was. I take extra vits too. I eat healthily. I take hemp tabs in evening to help me relax and herbal sleeping tabs. I also take a souplike the called d-ribose, which is supposed to help energy in muscles, theirs and hemp tabs I get off of amazon. I use a hand massager and heat, hot water bottle, also Volterol gel and just normal pain killers. I am on anti depressants too.

I was told at my pain clinic that not to fight fibro as you would a cold etc, so not to try to keep on as normal. It may mean adjusting your life a bit. Also to pace yourself, which means do a little, rest and repeat. I have found that this does work, unless I over do it and then I suffer fro a day or so.

This is how my routine goes now, just to give you an idea.

As I don't sleep well and wake up in a lot of pain, mornings are not good for me. I have to get up do stretches and walk around slowly and get dressed etc. Because of this, I tend to get a bit better as the day wears on so tend to do most of my chores at night, then they're done in the morning so I don't have to worry. I also go swimming at least one day a week, I used to swim a lot now I only do about 4 to 6 lengths with rests. It's a bit pathetic, but I feel it helps. I then go in the warm jacuzzis to rest and have the massaging benefits. I'm shattered when I get home, but I feel in the long run it must help.

I do hope something I've written may help you.

Ohh yes a nice warm bath in Epsom salts may help you, as the magnesium is absorbed quickly this way.

Good luck and I look forward to reading how you're getting on.

Best wishes. 😊

Lady2 profile image
Lady2 in reply to

Thank you for your reply there is a lot of of helpful stuff to think about. I also have an acoustic neuroma, loss of some of my vision, plus other problems I recently had bloods done and been told I have very Low b12 and I am anemic I also have started up a physio type class but in water to try and help thank you

in reply toLady2

Hope it goes well.

Good luck 👍😊

BlueMermaid3 profile image
BlueMermaid3

Hello Lady2

Welcome to the forum :) I am sorry to hear that you have recently been diagnosed with Fibromyalgia.

As Hidden has said, Fibro does seem to come with lots of other illnesses too.

You may like to have a look at our mother site, which will give you a wealth of information about Fibromyalgia fmauk.org

We are very aware of internet safety on the forum, and to this end, we generally recommend that you lock your posts. Unlocked posts can be shared all over the internet and social media without your knowledge.

I have given you a link where you can read up about how to lock posts. However, if you need any help, please let me know and I will be more than happy to help.

Here is the link:

healthunlocked.com/fibromya...

We very much have our serious side, where we can share our experiences of this horrible condition, but we also like to have some fun too.

Please do feel free to just jump in with anything that is happening or that interests you.

I have had Fibromyalgia ME/CFS (Chronic Fatigue Syndrome), Hypermobility Syndrome and other chronic conditions for 30 years.

My personal advice to you would be to just take some time out to try to come to terms with your diagnosis. Even when we sometimes suspect that we have Fibromyalgia, or we know something is wrong but don't know what it is, it can still come as quite a shock to the system to finally get a name for our condition.

After that, try to find out as much as you possibly can about Fibromyalgia. Even though I have suffered with Fibro for 30 years I am still learning.

I very much hope that you enjoy the forum, and if there is anything that I can help you with please let me know.

Wishing you less pain and more peace

Lu x

Administrator

Kitten-kat23 profile image
Kitten-kat23

Hello and welcome.

TheAuthor profile image
TheAuthor

Hi Lady2

I sincerely hope that you are feeling as well as you possibly can be today? Welcoem to the forum and it is wonderful to make your acquaintance.

I am so genuinely sorry to read that you have multiple health conditions, and I want to sincerely wish you all the best of luck, and please take care of yourself.

All my hopes and dreams for you

Ken

Kingsusyq profile image
Kingsusyq

Good morning and welcome to this fantastic gang of the friendliest people. I hope you find it as comforting as I have, just knowing there are so many people just like you and all willing to share their way's of coping with fibro. Have a good day.💐🌺🌼

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