new member

[Misspain]

Hi i a new member 30ish and live in the chesterfield area, just wondered if there was some local out there who would like to chat . My parnter also suffers as well as my mother in law.

[ladymoth]

Welcome, Misspain,

We're all local in the sense that lots of us visit this site, and we're all sufferers of fibro, so we know how you feel. You have quite a 'family firm' there - it must be difficult. At least your partner and his mum will understand how you feel - and you will understand them, of course!

We shall look forward to hearing from you, so please feel free to join in.

Have you seen our main site?

fibroaction.org

Lots of interesting information there, and please read our guidelines on the right of this page!

Moffy x

[Misspain]

Do any other suffers also suffer from Raynauds Syndrome (another painful form of rheumatoid authrites. I head this is uncommon. Im just fed up with the pain and the worst is the rudeness from strangers whom just assume Im fat and lazy, the dirty looks the snide comments talking behind your back, do any one know how to hande this as Im fed up of trying to explain how i feel and people do not understand.

[Fibrofoggiest in reply to Misspain]

Welcome to this lovely site Misspain, yes, I too suffer with Raynauds and have done so for years, there is a medication which I was on for a while which isn't specifically for Raynauds, but it's side effects help. My GP suffers with it too and he prescribed it for me and it did work, but it also made my face very flushed, I think to do with dilation of the blood vessels, if I'm wrong Moffy may put me right. For the life of me I can't remember what it's called, it will probably arrive in the gap where the brain should be at about 3 am, if so I will post it for you.

Im sad you have people being so unpleasant, it's hard and I'm not great at it, but try to treat them with disdain and not lower yourself to their level. The only person you are answerable to is yourself, and you know what you suffer is real, as do we, so take consolation from understanding people here, and use that to disregard the others who truly do not need any explanation of your illness, you are ill, you know it, that is what matters. I hope this helps in some way, but I promise you this is one of the best places you can come to for advice and support.

Foggy x

[ladymoth in reply to Fibrofoggiest]

Nifedipine or amlodipine are the drugs usually prescribed for Raynauds - they are vasodilators and can cause flushing.

Moffy x

[Fibrofoggiest in reply to ladymoth]

Look...... told you the inestimable Moffy comes up with it, I was on nifedipine and came off because of the flushing see Misspain, I said there were great people to great advice

Foggy

[Misspain in reply to Fibrofoggiest]

Thanks

[Hidden]

I don't but yes we do have members with raynauds so hopefully they will be on here soon...as to handling rude looks and comments I have to use a mobility scooter or sticks so have a many great one liners to give to the people who tut and give you dirty looks ... But I have had fibro over 20 years so have grown a nice thick skin

Welcome to the site

Vg x

[Cookie72 in reply to Hidden]

Hi there, yes only this morning I was in sainsburys on two crutches having avery aday and can hardly walk when a lady behind m tutted so loudly, and sAid for goodness sake, and I moved to say somthing and she sped on saying in a nasty way for goodness sake all because I couldn't move out of her way quick enough I was also with my severely partially sighted friend with I might add a white walking stick. So that shows u just how rude so e people can be, so just ignore them they arnt worth u wasting your breath on them, welcome to this sight misspain, gentle hugs to you ....Dee x

[Misspain]

Whats the best form of heat, ie head pads, heat spray, blasts from hair dryer, hot water bottle or microwave heat bags, Any other ideas welcome as I find (sometimes) this can help.

[RIBBONPINK in reply to Misspain]

i use peat heat pads which you put in microwave they give out a nice constant heat not too hot pinkribbons

[Hidden]

I have two heat packs .... for my neck and shoulders I use deep heat neck and muscle rescue cream as its not as hot and smells nicer than standard deep heat... I also use a hot water bottle ... Anything like these a lot of people on here have ..

VG x

[Misspain in reply to Hidden]

Thanks for all your advise, it been helpful, i will try some ideas

[Fibrofoggiest]

I use micro wave heated bags, but of the non smelly variety otherwise a migraine comes to join the pain party !

Foggy x

[haribo36]

Hi there,I use wheat bags you put in the microwave and I used to have an electric heat pad which was fantastic but it's no longer working so Iam on the lookout for another.Someone on here said there is a good one in Argos and you can get the wheat bags in super drugs for really cheap x

[missjones]

i live in Chesterfield :-)))) x

[Misspain in reply to missjones]

nice to find someone local thanks x I'm in a village just outside the town centre