Fybromyalgyia pains: I dont know if... - Fibromyalgia Acti...

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Fybromyalgyia pains

newportrita profile image
8 Replies

I dont know if anybody else is having the same problem as me, but I am taking 3 different types of anti depressants, galbapentin, amd zapain. Nothing is working, my dr gave me tramadol slow release instead of the zapain and told me that if they didnt work then there is nothing else she can give me as I've tried every other combination. I have all of the symptuns that come with fybromyalgia, as well as dyslexia, dyspraxia, arthritis at the bottom of my back, I was only diagnosed with fybromyalgia a few years ago, after over 20 yaers of going back and for the drs for all the different things, ifelt an enormousWeight off my shoulders when I was finally dianosed I finally knew that I wasnt imaginaning it. My children are grown up but they say that I'm always ill and a hypercondriac, but I say that I'm not ill I'm in pain its a different thing. I just dont know what is going to happen now because whatever I try I still have the severe pain everywhere I work as a cleaner 3 hours a day which tires me out. I judt dont want to be in pain 247 every day of my life.

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newportrita
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8 Replies
Hartleyhare2 profile image
Hartleyhare2

Has your Dr not mentioned MST which is slow release morphine tablets or for break through pain Oramorph, liquid morphine. I am on both as are several fibro friends. It's obviously not ideal to take opiates but if you need it you need it, I wouldn't have any life without it. I also use a magneseum supplement with my morning tablets that helps leg pain and is natural. I would chat with your GP.

newportrita profile image
newportrita in reply to Hartleyhare2

No my dr hasnt mentioned these too me, but I have tried everything else and nothing has worked, so I will be making an appointment to see my dr because I cant put up with the pain anymore, I sit and cry every night because of the pain. Thankyou for the reply.

rosewine profile image
rosewine

So sorry to read your post Is always in pain some days better than others and it makes life very difficult.

I am just wondering whether your cleaning job is making life much harder for you exhaustion and pain wise. Met my friend yesterday who has osteo in back and other health problems and her last job before retirement was as a cleaner. She said she realises now it was the worse job she could have done and she feels it has made her health conditions worse. The majority of us includinging me have great difficulty doing our cleaning and if you are having to do your own housework and the. Doing cleaning another 3 hours you must be exhausted and we know that pain then feels more.

Has your doctor offered you or have you asked for none drug intervention like physio, acupuncture, hydrotherapy, cognitive therapy, pain clinic or Expert Patient Programme as sometimes one or a combination of these can help.

Ithink only us who ensure fibro and other problemseverydaycwn truely understand what you are going through. Other people can be Dy pathetic or unsympathetic like your family is but they don't have to walk in our shoes. Take care of yourself.x

newportrita profile image
newportrita in reply to rosewine

Over the years I have had acupuncture, cupping, physio, the needles in the feet, massages.none have helped I havent had hydrotherepy though, that hasnt been offered to me. Thankyou for your reply

rosewine profile image
rosewine in reply to newportrita

Hydrotherapy was the one that seemed to help my mobility the most. First three sessions more pain and then by the last two I felt my joints were more flexible. We are limited to 6 in our area and physio wanted to give me more but was not allowed😥😨😭 Unfortunately normal swimming baths water too cold.x

TheAuthor profile image
TheAuthor

Hi newportrita

Welcome to the forum and it is wonderful to make your acquaintance. I have pasted for you below a link to our mother site FMA UK[/]i] which hosts loads of useful Fibro information:

fmauk.org/

I have to completely agree with your other two respondents as there are plenty of avenues still open for your doctor if they feel it is appropriate for you? Ask for the referrals that rosewine mentioned and the medication that Hartleyhare2 mentioned.

I want to sincerely wish you all the best of luck, and please take care of yourself.

All my hopes and dreams for you

Ken

newportrita profile image
newportrita in reply to TheAuthor

Thankyou for your welcome and reply, I hope all my dreams come true too. I just want to have 1 pain free day.

Shazzzy profile image
Shazzzy

Hi newportrita, have you had your vit d levels checked by doc as most fibropeeps are very low in this vit which contributes to pain/exhaustion. Also using magnesium salts in warm bath definately helps with pain and cramping. Magnesium also available in spray form to massage into muscles. Just a few ideas and as others have said hydrotherapy really best form of exercise for fibro . All the best

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