I have had Fibromyalgia for more years than I care to remember and was diagnosed in 2000. Wondering if fellow sufferers have a problem with swallowing, choking, constant coughing/clearing of mucous from throat ...morning and night. On Wed. am whilst making myself a cup of tea I tried clearing mucous from my throat which brought on the most frightening choking episode. I ended up on my front lawn croaking like a frog as I could not get oxygen into my lungs. (thinking certain death) After a short while my oesophagus/trachea began to relax and I slowly came round. I am now awaiting to have a camera put down there to see what was the cause. Not the first time this has happened!!!

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  • HiAlegnaB,

    That must have been very frightening for you. Have you ever had your thyroid levels tested? I can have difficulty swallowing and can end up coughing as if I have something stuck in my throat. I have thyroid disease and this is a common symptom. If you have been tested get your results and post them on the thyroid forum for members to advise. It's no good just believing they're fine if the doctor has said they are normal because doctors don't understand the thyroid properly and misunderstand the tests. Along with fatigue and tiredness, joint pain, fatigue and tiredness, aches and pains, all symptoms of thyroid disease. So it's worth a thought.

    Edit: just realised I repeated fatigue and tiredness!

  • Yep...Already take thyroxine for underactive thyroid. Was diagnosed by my optician. On 100mg per day.

  • In that case your b12 levels may be low. Swollen tongue and difficulty swallowing and choking can happen with that too!

  • LtAngua..I had my B12 tested as there are 5 Family members on regular jabs. My Grandmother (RIP) dies of Pernicious Anaemia. x

  • What,was your b12 level? Under 500 is definitely deficient, best to be 1000 at least for brain and nervous system health. The fact it's in the family is significant.

  • I have no idea what the count was Angua...Just informed me that it was normal. I really should educate myself in those matters and then be prepared with the questions! x

  • Sorry to go on about this, but they don't know what normal is. The BMJ and the British committee on standards in haematology say that the ranges are wrong, too low, so doctors aren't diagnosing deficiency when they should. Normal is just an opinion. I really would get the result, you are entitled under the data protection act 1998, then post on the thyroid forum. Especially when it's in your family. Ok, will stop going on about it now!

  • I have terrible trouble with choking. It happens all the time when I'm eating or laughing, it's a nightmare.

  • AlegnaB , I do have that clearing of the throat alot. I've never tagged it with FM. Hope you can't find out what caused your attack...Good luck with the camera down the throat "Been there, done that!!" Peck.🐀

  • I have had it done a few times before too Last time was 13 years ago. x

  • AlegnaB , My msg said can't find out, please forgive me was done in error, hun!! Peck.🐀

  • Yes I too had a gastro this week for the very same things, I suspect my diagnosis will be a visit to ENT as my eye lids are dry and cracking, my tongue soaks up fluid like blotting paper, my ears have no wax and itch like ***my nasal passage has no secretion just dryness and cracking and my throat drys off profusely causing a non productive cough until I choke and I feel like I have a pill stuck down there which makes me keep swallowing, swallowing has become a chore sometimes depends on what I eat and so have gone to fluidy food for now as my throat hurts like its closing when I swallow things like bread or something dry like chicken unless I smother it in gravy.. I,m sure its NOt fibro related but I will let you all know when I find out..

    Nurse Gladys Emanuel (open all hours) sends you week end calm and professional hugs!

  • Aw.. thank you caz-54 for your response. I too have lots of the above you mentioned. My tongue sticks to the roof of my mouth because of dryness. I drink litres of water throughout the day. My eyes constantly sting. I use Boots own dry mouth spray recommended by my consultant. He uses it and it does help..esp. at night. If I get a diagnosis I will of course post it on here. Best of luck to you. Angela

  • Hello AlegnaB I have tried loads of water but my tongue is the problem it soaks up fluid like blotting paper,I too use "Expert from Boots" and also "Pronamel mouthwash by senodyne-very oily based products with Hydrogenated castor oil does the trick for a short time. Me thinks it might be Sjorgrens Syndrome although it takes for ever to get a diagnosis and it comes with a lot of fatigue!1 so we shall see.

  • Hi Caz I thought so too but my GP has ruled that one out!

  • Alegna I,m afraid it can be a postcode lottery with the NHS. to diagnose Sjorgrens is a lengthy expensive procedure and some practices don,t have the funding. I started off with dentist who referred me to city dental hospital who are carrying out the tests WHEN they fit me in as I am not seen as an emergency-I am not in pain!!!

  • Hi Angela. I too suffer from mouth, nose and eye dryness. Thank you for the tip about the dry mouth spray, I also bought the mouthwash, and after using them for two days I find it really helpful. I was prescribed Carboner eye gel, I find this difficult to use as I have bletheritus, not sure about the spelling here, 😁😁, and it seems to irate the condition. May be worth talking to your Optition he might be able to recommend something. Wishing you a peaceful night. Sending hugs.

  • Hi

    I'm afraid my answer to your question is yes. It was one of the first symptoms with sore hands, feet, fingers and toes I got. At first my dr thought it was reflux, but now I'm told it's to do with the fibro.

    I have not been given anything for it. I just have to be careful what I eat and chew it well etc, be careful swollowing fluids. A nurse told me that sipping through a straw might help with controlling liquid flow etc.

    Good luck and best wishes 🌸

  • I'm actually waiting on appointment because I feel as if the right side of my throat has something stuck and I choke on things that are dry and bread

  • Hi Lozzles. I am exactly the same. Had my meds earlier and some are stuck on the right hand side of my thyroid. Already had 1 1/2 litres of water to wash them down.. to no avail. had this for years and tests do not show anything wrong.

  • I get this regularly even when I am not eating or drinking. Sometimes it starts from nothing or like a bit of spit catches an inward breath and I start coughing and feel like Im about to peg it because I can't get my breath. I have constant dry mouth and my tongue also feels like it doesn't fit my mouth anymore and I have felt like I have a marble in my throat for a couple of years. I have seen end twice for camera up my nose and down my throat but they say nothing wrong just the usual "lose weight". Back to ENT again soon but this time with vertigo I have had since April. gentle hugs. J

  • Exactly the same Hebden. Had it for years and getting worse. x

  • a really good "cop out" when the so called specialists can,t give you an answer, especially when the doctor seeing you is grossly overweight and you fell like saying "I will if you will share your diet with me" Bit sarcy but sometimes it triggers off this response when all they need to do is refer you on to a bigger more experienced Trust that have more knowledge and funding.

  • Hi AlegnaB

    I am so genuinely sorry to read that you are experiencing this horrid issue, and I sincerely hope that you can find some relief to the problem. There is a general medial condition called Dysphagia, and am wondering if you can relate to this? I have pasted you an excerpt and a link to the *NHS Choices cache on this issue:


    Dysphagia is the medical term for swallowing difficulties.

    Some people with dysphagia have problems swallowing certain foods or liquids, while others can't swallow at all.

    Other signs of dysphagia include:

    coughing or choking when eating or drinking

    bringing food back up, sometimes through the nose

    a sensation that food is stuck in your throat or chest

    persistent drooling of saliva

    Over time, dysphagia can also cause symptoms such as weight loss and repeated chest infections.

    You should see your GP if you have swallowing difficulties.

    I want to sincerely wish you all the best of luck, and please take care of yourself.

    All my hopes and dreams for you


  • Thank you Ken. I have read up on dysphagia and I have every symptom and more. I'm hoping I will get some answers when I have the endoscopy.

  • Good luck with the endoscopy my friend.

  • Hi again, I think this was meant as a reply for you :)

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