So not fair

I have severe pain every day only recently diagnosed but have had it a long time since 1997 when my son was diagnosed with a brain tumour he is severley mentally and physically disabled from it so I am his carer my motto to walk is no pain no gain I have to carry on for him I wish there was a cure for it but we just have to do our best some days I cannot walk my knees are so painful but the worst is I have no aids at home for my son and I just not fair so to every sufferer keep on smiling it could be worse xxxx

7 Replies

  • Hi I really feel for you its bad enough to deal with fibromyalgia but to totally care for another as well - must feel impossible - so sorry to hear about your son - I have two boys (grown up) - thank god they are healthy - I feel sure if you get some advice you would be entitled to aids or some kind of help - I hope so - its about time people in this country that truly need help - get some help easier - good luck - thinking of you - Neese x

  • Thankyou for your reply just got to get on with it am moving house soon so let's hope new area new help lol

  • When you move ask Social Services for a full assessment for your son and also for you as a carer as you have rights to. Don't take no for an answer as you cannot carry on like this. If they refuse get help from the CAB not or a local Disability organisation. good luck and take care of yourselves my thoughts are with you.x

  • Rosewine has given you excellent advice. All I can really do is to say that I admire what you do day in and day out. It must be very difficult to look after your son on top of the myriad of Fibro delights. You should be proud of yourself 🐸

  • Thankyou everyone for the helpful advice good or bad everyone keep on smiling through the pain 😊

  • If i move to canary islands would I feel better and if so could I take disability benefits eba support group pip and my sons dla wondered if any one knows need to do something so I can continue to care for my son aŕrrrr

  • Hi savanarian2008

    I sincerely hope that you are feeling as well as you possibly can be today? Welcoem to the forum and it is wonderful to make your acquaintance. I have pasted you a link below to our mother site, FMA UK which hosts loads of useful Fibro information:

    I am so genuinely sorry to read of your situation, and I agree completely with ''rosewine'' as you could ask your local council for an assessment of your needs for your beautiful son and possibly get some much needed equipment and help?

    I do not genuinely know if you can have ex-pat status with disability benefits? However, I have pasted you a link to (Janet) who is the FMA UK benefit adviser and she may well knwo the answer to this?

    I want to sincerely wish you all the best of luck, and please take care of yourself.

    All my hopes and dreams for you


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