I think I have fibromyalgia but having a nightmare withy gp surgery!

Hi I am really convinced I have fibromyalgia, I have a lot of the symptoms..

-I am sensitive literally all over my body

-I have fatigue

-I can never sleep and if I do its broken sleep

-I have constant severe pain on the left hand side of my stomach

-I have terrible memory (but also have mild cerebral palsy, with a whole in my brain) but it seems to be getting worse

-and really bad headaches

Can anyone help I'm really concerned. I also don't have any periods but I'm not on anything to stop them, they just don't happen. Any advice??

Thanks in advance 😊

6 Replies

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  • Hi Gbealexo It does sound like you have a lot of the symptoms but Fibromyalgia is quite difficult to diagnose as there are so many other things with very similar symptoms.

    Your GP should be taking blood tests & trying to elimate what it isn't & if he doesn't know what the problem is he should be sending you to a specialist, who would be more equipped to investigate if you have can Fibromyalgia. It can take a long time before a diagnosis is made,

    If he is so rubbish & you are feeling so Ill, it is always a good idea to take your partner or someone close to you to doctors so they can speak for you because its very difficult to say what you need to say when you are feeling so unwell.

    I remember so many times coming out of doctors & breaking down. It's a hard road you have to travel (Im sorry to say) to get a lot of doctors to really listen to you and you will need to be strong & persistant, which you probably don't feel like that right now. This is why good idea to have someone with you.

    Peace Luv n light

    Jan x

  • Thank you janet28, they have ruled sinister things out but now I seem to be at a dead end and just being told to take painkillers. I'm gonna see if I can be referred to someone who can find out if I have fibromyalgia, thanks again 😊

  • Okay, well maybe you can say to him that if you have not got all the other things you've been tested for, what have you got wrong with you then & ask him if he thinks it could be Fibro & he says yes, ask him if he can refer you to a specialist because there are tests that a specialist will know if this is what you have.

    Thing is its easier for them to send you away with pain killers which don't sound like they are doing much good & anyway, this can be the way if you have it. At then end of the day, if you have got it, there is other medication you can take to ease the symptoms.

    Jan x

  • Hi gbealexo

    Welcome to the forum and it is wonderful to make your acquaintance. I am so genuinely sorry to read that you are suffering and struggling and I sincerely hope that you can find some resolution to these issues.

    I have pasted you a link below to our mother site, FMA UK which hosts loads of useful Fibro information: fmauk.org/

    Fibro can be difficult to diagnose, and it could help you if you could get a referral to a Rheumatologist from your doctor. You never said what the issues were with your GP surgery? So I do not know if a referral is possible? If not, it may prove beneficial to try and register with a new surgery and gt a referral. I want to genuinely wish you all the best of luck.

    I have noticed that you post is not locked to the forum and it open to the internet. Post that are locked to the forum tend to get many more replies than posts that are not locked to the forum. I have pasted you some instructions below should you want to lock your post:

    To lock a post when you've finished writing it scroll down to the bottom of the blue box and you'll see on the left hand side two options:

    o Everyone

    o Community

    If you click on the Community option, this will then lock your post.

    If you want to lock a post that you have already put up onto the forum, find your post and again scroll to the bottom of the blue box. You'll see a small downward arrow (v). Click on that and you will get an Edit option. Click on edit and then select the Community button as above.

    All my hopes and dreams for you

    Ken

  • My Gp wasn't very helpful/understanding either. Ask to be referred to rheumatology, they diagnosed me and actually listened (which was a relief because according to my gp all my symptoms were "mild" [osteoarthritis etc] ) I now go to physio for acupuncture and take pregablin and cocodamol which helps. I also use a tens machine which has become my new best friend as I couldn't manage at work without it. Hope you go on alright. If all else fails ask to change Gp's as it was actually a locum doctor who refered me.

  • I think I have it but I kinda don't wanna say to gp oh I think I have fibromyalgia as worried hell just dismiss my concerns

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