I don't have much of a social life because I can't walk more than 20 mins if I need to go somewhere where there's a lot of walking involved I don't go and going on holiday is a prob aswell they time I go away I get tired out I just want my fibromyalgia to go so I can get bk on with my life and enjoy it
Unhappy: I don't have much of a social... - Fibromyalgia Acti...
Unhappy
Written by
Manu2015
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30 Replies
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hi there i know how you feel, i'm in the same boat as you, but do you drive, or do you have to rely on some one. i'm Alan its nice to take to you take care speak to you later
Manu2015 in reply to
Hello Alan my name is matthew and no I don't drive when I go anywhere I use privat transport or I get a lift off someone
in reply to Manu2015
hi Matthew i do drive so it easier for me, but surely the people you ask don't mind, where in our country are you from, i'm Worksop, Nottinghamshire. take care speak to you later Alan
Manu2015 in reply to
I live in swindon wiltshire
in reply to Manu2015
hi matthew many thanks, i've been there when i used to drive HGV lorries, but not been they since i had to give up work through illness take care Alan
Manu2015 in reply to
Sorry to hear that Alan what's wrong with u if I don't mind me asking
in reply to Manu2015
hi Matthew wow where do i start, i've got diabetes type two tablets and injections, osteoarthritis in my spine, hips, and knees, three disc out, trapped sciatica nerve damaged, server sleep apnoea, Aspergers syndrome, dementia, damaged right collar bone and shoulder, industrial deafness, hernia right hand side of my stomach been waiting 17 years for that to be done,depression, nerves, panic attacks, psoriasis, stress. plus i'm losing weight. i think that's about it, if i think of anything that i've forgotten i'll let you know, but apart from that i'm ok. you can asked whatever you want Matthew i don't mind take care Alan
I know I do want to give up sometime it's so hard to live with
I am so genuinely sorry to read this and I want to sincerely wish you all the best of luck.
All my hopes and dreams for you
Ken
We are all the same boat you got bite the bullit get on with it and stop moaning Do think you the only one with horrible pain we've all got it that's why we are here 😖
Manu2015 in reply to
I do know that
Manu2015 in reply to
I dident like that post I do get on with it I just get some days where I want to give up and do u think I don't know I'm not the only one with pain cos I do
deejames in reply to
Erona, I'm afraid your reply struck me as unhelpful and unkind. If you don't have anything useful to contribute its best not to say anything at all don't you think ?
You are clearly in a horrible place at the moment. I do hope you feel more positive soon.
Dee
in reply to deejames
I don't what your talking about clearly you have got this wrong I'm not unkind to know one , I'm here to help Iv had Fibro for 15 years so I think I know hat I'm talking about Im not here to stir up trouble I'm to ill for that Please just be friendly and happy on the Foram were all In pain and stress makes worse What did I say toup set you I don't even know you Is your fibro bad as mine hope not
Manu2015 in reply to
Just dident like what u said yetday but I want to forget about it sorry if I upset u I've had fibro nw for 5 years and 2 months it can get quite bad but I have a massage once every two weeks that helps
in reply to Manu2015
Iv thought about massage I'm male so I may be a bit shy when it comes to massage Don't worry about what I said If you knew me better you will see I'm kind and loving kind of person Sometimes when things are said it gets you thinking and now I hope we can be friends , What you say tell me
Manu2015 in reply to
Yes friends will be fine
in reply to Manu2015
Ok I'm going to the Tinnatas clinic today to try out the new maskers they My Tinnatas drives me nuts Having pain all over my body and Tinnatas is so hard But stiff upper lip and all that stuff have you tried Loranzapam to help you sleep you do get hook on them but they are good fo sleeping I take four 1 mg at night Hope you have a better day If you spell my name backwards you will get my real name .
Manu2015 in reply to
Cos of the tablets I'm on I sleep fine
deejames in reply to
I don't think it's helpful to get into a discussion about this but telling someone to bite the bullet, stop moaning and get on with it could be construed as unkind. I see you have apologised and that's good.
Hope you have a good day.
Dee
in reply to deejames
Yes I did and its all fine, But I see you seem to want want to continue the argument and make a big deal about It.
I am loving and helpful I don't want to fall out with you but may be it would be better if you just drop it now please! Iv got plenty of friends on the forum And i want to concentrate on helping them . Not Arguing with you. Have a good day .
Manu2015 in reply to
No I've put it behind me nw sorry
Reading this at 4am bcs night pain wakes me every night, happy to connect with others who know what I mean when I talk about being too tired to go anywhere. Finally accommodated to being home all the time. Social lives are overrated 😉. At least we have each other!
I need to know in advance what approximate length of time, terrain and purpose of the trip, so I can choose whether to use my wheelchair or rollator. I can no longer drive due to sight issues, so transport is another problem.
There are ways to socialise. You have to be creative in tailoring things to your needs. For example I've been invited to join a group of friends to go to an exhibition and then lunch. Travel together by train. The whole thing will be too much for me but I plan to make my own way there and skip the lunch. That way the day is shorter but I still get to see my friends and the exhibition. My initial reaction was to think of course I couldn't go and then feel depressed and resentful.
On the day it any all not work out but I'm going to try.
I hope you find solutions. Its too easy in a way to think that you can't and so end up isolated and lonely.
Dee
I sympathise with you as I feel I have to plan everything - would be nice to be spontaneous. I do socialise but I have to do it in shorter sessions, even if it means just 20 mins in a local pub! I leave early (don't like being out too late anyway, avoids the drunken idiots on public transport) and use Internet to check the buses/trains. Fibro often makes me feel I have to compromise, but in the long term it's better if I do.
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