Told I had fybromyaligia at 17.

[Coley03]

Hello all I'm coley. Female from north west.

I was diagnosed when I was 17. Which was a pretty gutting feeling as my hopes for the army went out the window.

Anyway I am now 23 years old and still no closer to having a fully stable condition. Everything more recently up in the air due to having seizures more and more often. Never had them before so pretty curious about them and why now....

A little insight to what I suffer each day.

Something new always comes along , sleep deprivation is a killer some days it's 3/4 nights without any sleep at all then other days I'm pretty much knocked out and forced to get out of bed to eat and pee. I struggle to get up dos times as muscle stiffness and aches occur. I actually struggle to do the simplest things at times like brush my hair. All down or up the stairs without assistance. Super sensitive skins and light sensitivity.

Anyway my reason for joining this and Talking about my story is mainly because I want to learn how to cope better. Hear other people's stories and maybe I could help or you help me. Maybe get advice and knowledge. Also to talk to people when dos,times I feel if I don't talk to someone I'm going to break.

[ROBYNL91]

Hi coley

I'm always free for a chat if you need to vent! I've had fibro for about 3 or 4 years now and at 24 it's not great. I have a lot of days where it's a struggle to get out of bed when it's just pain pain pain so if you fancy a chat you can do so here or pm me

[Coley03 in reply to ROBYNL91]

Thank you very much. I have no idea how to pm anyone so could you possibly pm me and then I can respond and chat to you from that.

I look forward to chatting with you. And also sorry to hear about your pain. Coley X

[andreasuperstar]

Hi Coley...so sorry to hear you are suffering at such a very young age. I think there are a mixture of ages on the site but you may be the youngest aah. Understand you're gutted about it affecting your career aspiration..have you thought about any other options? I know you feel rubbish mostly but it might help for you to focus on what you can do or what skills you can develop or learn. You could become a blogger and raise awareness as a younger person with the condition...or maybe, once your condition is able to be stabilised, you;d make a great nurse? Who knows? Look at the possibilities for you and try and stay as positive as you can. Set some small goals and see how you get on x Good luck.

[Coley03 in reply to andreasuperstar]

Could you pm me ?

And yeah I've looked into most options really I just sometimes feel as if I don't fit into society. I mean my specialitys are art and photography. Animal care. Childcare. Adult/elderly and special needs care. Housekeeping. Farming. Counciling injured soldiers.

So kinda mainly in the care work.

I am trying to keep as positive as one can honestly I am. But sometimes I just feel like I am becoming a burden to my family and partner.

[andreasuperstar in reply to Coley03]

Hi Coley - so sorry...not sure how to pm?!? Why do you think you don't fit into society? You sound like a very creative and caring person with may diverse skills there. You don;t need any anyone's acceptance. You are you ...that's all anyone needs to know. End of. There will only ever be one of you. I'm sure that as busy as people are, your partner and family do not consider you a burden.

[Hidden]

Hi Coley, it's so nice to have you on our forum, I'm so sorry you have to suffer at such a young age. You will find lots of us here who understand you and will always be here for you. Love Anita xx

[Coley03 in reply to Hidden]

Thank you much appreciated xo

[TheAuthor]

Hi Coley03

I sincerely hope that you are feeling as well as you possibly can be today? Welcome to the forum and it is wonderful to make your acquaintance. I have pasted you a link below to our mother site, FMA UK which hosts loads of useful Fibro information:

fmauk.org/

I am so genuinely sorry to read that you are suffering and struggling so much and I want to sincerely wish you all the best of luck.

All my hopes and dreams for you

Ken

[Coley03 in reply to TheAuthor]

Hello Ken. Thank you for the link I'll be sure to check that out ,

Thank you very much I appreciate you pr caring thoughts.

[Hidden]

Hi Coley' it's such a shame when you have it so young, I wish you well and hope life gets a little easier for you . Take care .xx

[Coley03 in reply to Hidden]

Thank you very much you too! X

[Lolis]

Hi Coley

I feel for you and can empathise. I was 16 when diagnosed, I was in so much pain and it sounded like my life was over before it began. I dropped down a deep dark hole for a long time. Im 29 now, married to a lovely man with a house our own little doggie

I tell you that so you know that your plans may have changed and life may be harder but its not over for you (or any of us yet!) so stay strong.

The turning point for me was CBT through the Pain Management Clinic. Medication never helped me but talking to someone impartial and letting out all the hurt/pain/fear/anger really helped. Have you heard of CBT?

Take care, Lolis xx

[Coley03 in reply to Lolis]

Hi there lolis,

Yeah I went the exact way too, sounds lovely to have what you have. I get a little worried that I am becoming a burden to my family and partner. I can't say have I don't think so anyway , I'll have a google though. Xo

Feel free to PM me.

Coley xo

[Lolis in reply to Coley03]

Sorry long version is Cognitive Behavioral Therapy. I was refered by my GP to the Pain Management Clini at my local hospital. They try to do an all round check up of your medication, physio, consultant etc which wasn't much use to me personally but I would recommend CBT they offered, def. worth a try if you are feeling how you do xx

[Charli93]

You need to try and get on the bath rehabilitation programme for young adults. It would do you the world of good X

[Coley03 in reply to Charli93]

I haven't heard of it before. To il be sure to google it today thank you.

[Charli93 in reply to Coley03]

Your welcome. I hadn't either and I was diagnosed two years ago!! I've finally been assessed and put on the waiting list so I'll let you know how it is. Hoping to get some of my independence back at 22 years old and take some weight off my partners shoulders. We'll see! Good luck with your journey and if you ever have any questions I'm literally a message away X

[BlueMermaid3]

Hi there

I'm sorry to hear that you have been diagnosed at such a young age. I have several dear friends on the forum who were diagnosed when they were in their early teens. I was diagnosed when I was about 20. That was 30 years ago.

If you ever want to talk put up a post and we will do our best to cheer you up, or message me if there's anything you'd like to chat about.

It's always a good idea to lock your post. If you don't then your post (inc your pic) and any replies you receive can be seen on the whole open internet. I'll pop back and explain how to lock you post. However it is completely your choice as to whether you wish to lock them or not.

Wishing you wellness and peace.

Lu xx

Here are instructions on how to lock your post:

To lock a post when you've finished writing it scroll down to the bottom of the blue box and you'll see on the left hand side two options:

o Everyone

o Community

If you click on the Comminity option and this will then lock your post.

If you want to lock a post that you have already put up onto the forum, find your post and again scroll to the bottom of the blue box. You'll see a small downward arrow. Click on that and you will get an Edit option. Click on edit and then select the Community button as above.

[Coley03 in reply to BlueMermaid3]

Thank you for that information I'll defiantly do the community way next time. I'm thankful for your info and if you could PM me that would be great. Thank you.