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Fibromyalgia Action UK

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Changes to format.

5 Replies

Hi i notice we have links to Twitter and Buttbook so please make posts private so anyone has to log in to read etc or all your dealings/details will be all over net inc DWP etc etc

Buttbook uses extensive data mining they go through your emails and things on your pc/phone i won't have it's chat app or even use fb on my phones at all.

but even if your not on there you are still but ghost accounted as they set one up for anyone near others that are and monitor your dealings even though none of there business there is a thing going through in Holland about there unwarranted data intrusions

So please be aware as in this present climate of data mining for private insurance companies to take over NHS etc we need to be on our toes!

I use things like Blur and Privacy Badger to block tracking things as my things are mine if you want to pay my net bills and buy me a nice pc then can do what you like until then stay off my pc!

5 Replies

Can admins put on other groups to warn them?

Fibrofoggiest profile image
Fibrofoggiest in reply to

We have been recommending locking of our posts for a very long time. If you are concerned about other forums too then you should direct a message to HU direct, admins are very busy taken up with our forum at the moment, so I hope you can deal direct with HU on this.

Wishing you the very best 👍🏻😊

Foggy x

fenbadger profile image
fenbadger in reply toFibrofoggiest

Agreed and good to see Badger has his uses.

After we spoke about Ground control to Major Tom the other day I got an email from "Mrsmajortom" at a really weird address. Needless to say it was blocked immediately

TheAuthor profile image
TheAuthor

I recently placed a post on the forum relating to this issue. It is always a good idea to lock your posts simply to get more replies from members who may not like replying to an open post.

All my hopes and dreams for you

Ken

Scouser58 profile image
Scouser58

Thank you for this valuable information,,,will be looking into this very soon,,,,,ttfn Karen.

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