PIP home assement: Hi I'm new to the... - Fibromyalgia Acti...

Fibromyalgia Action UK

59,982 members67,147 posts

PIP home assement

fjh29 profile image
32 Replies

Hi I'm new to the site - I have been reading a lot of scary stories regarding pip - I'm having a home assessment next week and after reading some of the posts I'm very scared -

I suffer from mental health issues - I have a physiatrist a psychologist - and I have a community nurse who visits me twice weekly - I also suffer from fibromyalgia - spine degeneration and Ménière's disease -

I​ would like some infomation on what to expect - regarding questions and what examintion will take place

thank you for taking the time to read my post

regards fjh29

Written by
fjh29 profile image
fjh29
To view profiles and participate in discussions please or .
32 Replies
dawn21dawn21 profile image
dawn21dawn21

hi fjh29 i had my assessment at a centre and they asked me the same questions you answered in your form they just need to know what help you get and about your daily living i dont think it was that bad because you know what you wrote its just really going over the same things and you can add anything you think you have missed so dont worry its only someone asking you questions its not a medical take care xx

fjh29 profile image
fjh29 in reply todawn21dawn21

Thank you so much Dawn21 for replying to my post - I really appreciate it - I'm​ just very worried - yes your right - it's someone asking me questions.

If you don't mind me asking - did you get PIP - I'm on DLA so mine is to see if I qualify for the ongoing payments and any changes there might have been - once again - thank you - I will let you know the outcome.

dawn21dawn21 profile image
dawn21dawn21 in reply tofjh29

hi fjh29 last year i went for my assessmet and didnt get it went to a tribunal and still didnt thats ongoing to the upper tribunal still but wefare rights told me to put straight back in for it as a new claim while i waiting for the other went about ten weeks ago and i have 8 points and i get the daily living which i am really pleased about dont forget to tell them if your condition is any worse good luck xx

dizzylynn profile image
dizzylynn in reply todawn21dawn21

8 points is low I thought.

dawn21dawn21 profile image
dawn21dawn21 in reply todizzylynn

i know dizzylynn it is but the first time i got nothing the thing that gets me is you have to really push to get it even though youre not well but then its ok if you work shocking really x

Just sending loving thoughts for you, with gentle hugs xx

fjh29 profile image
fjh29 in reply to

Thank you so much xx

TheAuthor profile image
TheAuthor

I am so genuinely sorry to read that you are feeling so scared and I would try to ensure that you are not alone on the day. I want to genuinely wish you all the best of luck with your assessment.

All my hopes and dreams for you

Ken

fjh29 profile image
fjh29

Good morning, I'm overwhelmed by the comments I have received , your all so kind, I honestly wish I had posted before I got into this state of anxiety.

It's hard to explain to friends the pain and suffering you go through, so a really big thank you.

BlueMermaid3 profile image
BlueMermaid3

Hi there

I just wanted to wish you all the very best for your assessment next week. I know that there is nothing any of us can say that will take away your anxiety (I suffer with dreadful anxiety so I do know how you feel).

However, try not to work yourself up too much. You'll just be asked some questions about your daily life. Things like can you wash and dress yourself, can you make a meal, how do you do your food shopping. That sort of thing.

Remember to answer the questions as if it's your worst day.

Come on to the forum anytime and chat to one of us. We all have Fibro amongst many other illnesses so we do understand.

Take care of yourself.

Hugs Lu xx

fjh29 profile image
fjh29 in reply toBlueMermaid3

Thank you thank you, I can't believe what wonderful people you all are, I should have posted a long time ago and probably wouldn't be in such a state, I think what stopped me, I didn't want to come across as moaning, so thank you.

BlueMermaid3 profile image
BlueMermaid3 in reply tofjh29

You're so welcome :) I do speak from experience and ended up attending a Tribunal for my ESA, although I appreciate you are asking about PIP here) so if you have any specific questions ask away. We are all here to support and help each other :) xx

Pat9 profile image
Pat9

good luck with this please let us know how it goes xx

fjh29 profile image
fjh29 in reply toPat9

Thank you and of course I will update, you have all been very kind, once again, thank you.

I_z_232_3 profile image
I_z_232_3

Please don't worry too much. I speak from experience, it is usually a nurse practitioner who visits. They are not coming to judge you or decide whether or not you get pip. Just be honest and tell them how you feel, they then send a report to the dip and they make the decision. Good Luck

fjh29 profile image
fjh29 in reply toI_z_232_3

Thank you so much, yes your right, but when you read the horror stories it makes me very scared and has sent my anxiety through the roof.

xshazx66 profile image
xshazx66

Hope all goes well for you, I have an assessment at capita centre and feel exactly the same, wish I'd asked for someone to visit, my daughters going to be with me but you just never know how your going to feel on the day

all the best good luck xx

fjh29 profile image
fjh29 in reply toxshazx66

Thank you, yes they wanted me to go to the assessment centre but my community nurse phoned and asked for a home visit.

I hope your medical goes well and all will be fine, take care and I will update after my assessment ,

I'm so glad I found this site and posted, I don't feel as alone anymore . X

Lottieonline profile image
Lottieonline

Hi there,

I too receive high rate DLA and I'm waiting for my invitation to fill in forms etc for PIP and the waiting is the worst. Everyday I wait for the post, no brown envelope today 😔

So at least you're in the system to be progressed I'm not, yet!

My anxiety is at its all time high, like I've never been so anxious in my lifetime

I just wish they would get round to me.

Good luck, be honest as if it was your worst fibro day, then you have nothing to be concerned about.

Lots of gentle hugs

Lottie Lu xx

fjh29 profile image
fjh29 in reply toLottieonline

Thank you for your reply, I hope you feeling a little better today.

Yes the waiting has a shocking affect on anxiety plus the pain from Fybro, I actually phoned and asked for PIP forms, my area is now being assessed I like you I was waiting for the "Brown Envelope " so I decided to apply, although I'm very worried at least it will soon be sorted, whatever the outcome .

Isn't it sad we have to live our lives being scared of being ill and no one believing us, very sad, you take care , I will update next week after the dreaded assessment x

dizzylynn profile image
dizzylynn in reply toLottieonline

I got my sons in last week, worded if you don't call & apply for pip his money will Stop yet hes not due for a renewal till march. What if folk dont get this letter, goes missing easy.

Lesley61 profile image
Lesley61

I was so scared when I whent for mine all I say is make sure some one is with you and to you all good luck and hope you get it I did but standard on both but was happy with that x

fjh29 profile image
fjh29 in reply toLesley61

Thank you so much - had my assessment today at home - she only stayed 20 minutes - said she was doing a paper review - she could see I was in a state of panic - so still no wiser - just have to wait and see - at least I've got that part over with - hope I don't have to start appealing - take care - and I​ will update x

dizzylynn profile image
dizzylynn in reply toLesley61

What is standard, I don't expect to get anything above standard mobility, to get high rate you have to be blind or in a wheelchair 24/7.

Lesley61 profile image
Lesley61 in reply todizzylynn

They is only standard and enhanced now they is no low middle or high just the 2 you get it's probably like high and middle x

dizzylynn profile image
dizzylynn in reply toLesley61

My dad got standard care and low rate mobility but cos he doesn't have anyone to do things he cant do he just Said he has to do it. Plus cares for my mum, day and night, told him to challenge it but I thought it was equivalent to low rate.

fjh29 profile image
fjh29

Hi - so sorry I've not been on here but I've been so poorly and anxious - well Atos came at 1 pm today and went at 1:20 pm - started the questionnaire but after 20 min - she said she didn't want to carry on the assessment - she could see I was genuine and they are now going to do a paper assessment - I honestly don't know if this is good news or bad - how long the wait again - is it ever over - but thank you for your support - I will be updating soon i hope

Lesley61 profile image
Lesley61

Good luck it was 2 weeks after when I found out let us know how you get on xx

dizzylynn profile image
dizzylynn

When I got my form they said I couldn't get a home assessment. I had to calll for closer one tho but the 1st one was cancelled due to staff shortages, the next one was all they had but my huby couldn't come with me so took my son to open doors etc, he's autistic but needed help with doors. The lady offered to take my bag, I wouldmt let her tho I panic if I'm not holding it but I didn't say that just said no and held it close. Worried this goes against my claim. She also didn't even look at my print out of my daily issues and side effects, she didnt even ask about the sciatica or anxiety. Worried they been ignored and I get refused again.

fjh29 profile image
fjh29

Morning all, still no news on my PIP assessment, over 2 weeks now.

fjh29 profile image
fjh29

Morning all - hope someone can help - had my home assessment in October - phoned DWP 2 December - the lady said they had written to my home community nurses on 18 November - all reports are back and that she would chase up for me.

Today I have received another appointment from ATOS asking me to attend a medical - I asked on what date did you receive info from DWP - 2 November - I asked why another - " because the ATOS Nurse had to abandon my consultation -

I ​was having panic attacks but told me that she could see I was a genuine case - she said they would write to my psychiatrist - and I wouldn't have to go through this again - what is going on - I'm now so confused - - hope you kind people can help .....

allydawn7 profile image
allydawn7

Hi i had mine at home i cannot stress enough if you can have somebody with you to help you through.The assessment will take anything from half an hour to an hour.They will make note of your appearance, how you move, talk etc.Tell throughout illness effects you daily things you can and cannot do how it effects rd your life , apparently prescriptions and any docs, hospital letters, if the exercises they get you to do hurt tell them I did ancestors to sit down.I won't lie it's not a pleasant experience but it does go quickly.I cannot empathise enough tell them how you are in your very worst day of your bedridden on those days tell them.Good luck xxc

Not what you're looking for?

You may also like...

PIP home visit

I recently added my renewal claim for PIP turned down . CAB told me to phone and tell them I wanted...
Amazonian profile image

Help !!! PIP FORM

HI . I'm 52 and I suffer from fibromyalgia, osteoarthritis and hypermobility joint syndrome. I...
Wickedbiker profile image

PIP

Does anyone know anything about  formerly DLA which is now PIP. What entitles you to this benefit?...

PIP tribunal.

I have been going through the PIP forms now since August refused September and they took my vehicle...
lrain profile image

capita doing home visit for PIP

I suffer from fibro myalgia, and low grade lymphoma. recovering from cancer treatment both chemo...
123456asd profile image

Moderation team

See all
Hazel_Angelstar profile image
Hazel_AngelstarAdministrator
Lynda_FMA_UK profile image
Lynda_FMA_UKModerator
Sarah_fmauk profile image
Sarah_fmaukModerator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.