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Fibromyalgia Action UK

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fibromyalgia

laneyh11 profile image
11 Replies

hi just joined yesterday I have had fibro for seven years now it took a long time to diagnose it was the rheumatologist who knew what it was he told me to go swimming and light excercise it did not work for me it made it worse its not nice to have it has affected every part of my body,im on dla at the minute but im supposed to be going on pip when its in my area can anybody give me tips how to fill this form in would appreciate it Im 53 now and take each day as it comes xx

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laneyh11 profile image
laneyh11
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11 Replies
Alib46 profile image
Alib46

DWP is a nightmare, I was diagnosed just over 10 years ago and I get high level mobility, don't think PIP will affect me. Good luck I hope you get it sorted. Fibromyalgia is so debilitating, like you I have it all over my body

laneyh11 profile image
laneyh11 in reply toAlib46

thankyou im on the high level mobility and low disability fingers crossed x

StaceyL7 profile image
StaceyL7

Go to citezens advice, they can fill forms in for you which is fab, as they know exactly the things PIP are looking for when assesing your claim. Fingers crossed your change over goes smoothly :-) x

laneyh11 profile image
laneyh11 in reply toStaceyL7

thankyou this is something i will look in to x

rosewine profile image
rosewine

Hi Laney welcome to the forum. Pip seems to be more difficult to get unfortunately so as others say get all the help you can. CAB are fabulous if you can't get help from there the Benefit and Works site is certainly worth the subscription money as they have in depth guides which we found very helpful for ESA.

Many here have first hand experience of applying for Pip so if you have any specific questions when the time comes ask away.x

laneyh11 profile image
laneyh11 in reply torosewine

thankyou will do xx

TheAuthor profile image
TheAuthor

Hi laneyh11

Welcome to the forum and it is wonderful to make your acquaintance. I genuinely hope that you find the forum useful, informative and loads of fun! I have pasted you a link below to our mother site, Fibromyalgia Action UK which hosts loads of useful Fibro information: fmauk.org/

As the others have said, the CAB is wonderful for its help with benefits. Also, our parent site has a benefit helpline that you may find useful. I have pasted you a link for below:

fmauk.org/contactsmenu/help...

I want to genuinely and sincerely wish you all the best of luck with your claim for PIP.

All my hopes and dreams for you

Ken

metty profile image
metty

hi, I try to go swimming and like you it just heightens my pain but I do try to continue as i think it is strengthening my muscles, I am 52 and after 3 attempts over the last 9 years I finally was awarded PIP this year. The forms are long and some questions are very silly but what I was advised to do by everyone was to get a friend or someone to fill out the form with you and you must, must put down the answers as if it is one of your worst flair up days because they are the most important days. good luck and try to continue with the swimming, i maybe get there 2 times a month but I think at least i am trying and mentally I feel better after a swim.

laneyh11 profile image
laneyh11 in reply tometty

thanks i was on the internet the other day went on you tube and noticed that there are chairaerobics which uses all your muscles so gave it a go it was not to hard so going to try this a couple of times a week x

metty profile image
metty

that is great, we have to try and keep moving as much as it allows us too. good luck x

Matrix profile image
Matrix

Hi I find all excersise painful and not just on the day it's usually weeks X. Welcome to the site they are just lovely on here .

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