I'd just like to ask some advice on fibromyalgia and what I should do in my current situation.
I've been told by a rheumatology specialist that most likely my health problems are fibromyalgia but that he "doesn't want to give me that label because it's seen very negatively in the medical community".
I've had health problems for years which were put down to IBS & the contraceptive pill I was on. After coming off the pill, these did lessen (about a year and a half ago). However over the past 10 months I've had increasing problems with: constant aches in my fingers, hands, legs, and shoulders, sometimes very severe pain the same places that renders me unable to do anything, exhaustion, migraines, nausea, and sometimes feeling very lightheaded/faint. I'm also very susceptible to pain and my boyfriend often pokes me playfully or picks me up and these things hurt when I don't think they should.
Sometimes only the aches are present and I'm able to work, sometimes I can't even get out of bed and a walk around the house makes me feel like I will faint.
My local doctor seems completely new to the condition. The specialist was very unkind, when I tried explain how I was struggling just to get through work he said "well we all have to do that" and basically told me to just live with it.
I don't know what to do. I'm on Naproxen and Codeine. I've tried Amitriptyline last week but I was violently sick and my doctor took me off it. He's now put me on Gabapentin - I took my first one this morning and fell asleep, but when I woke up I felt awful: the pain was very severe, my arms felt very heavy and like I couldn't even lift them. Not sure if it was the gabapentin or not. Is that normal?
I'm sorry for the long message, I just feel very desperate. I'm currently working and I'm ill all the time and close to losing my job. Every time I'm off ill I've had to loan money, which is getting me in debt. And I'm worried the doctors will never be able to fix it or help me.
Can you offer any advice? Is there a fibromyalgia specialist in Leeds that I could request to see?
Thank you for any help.