Could I ask a couple of questions to the experienced suffers please?

Firstly, doing a wee. Is it normal with fibro (as never had this before), that you find the need to wee without any warning? I have put on weight with pregab so thought it might be that (I'm just fat)? but there is such an urgency to wee. My arm is strapped up, so having to pull down my trousers whilst not wetting myself is slightly comical at the moment.

If this is fibro what can help? can I tighten muscle? the mornings are the worst, its embarassing but I basically wet myself whilst running to the toilet for my first wee.

Second question please (pushing my luck!) but has anyone suffered with tendentious? my elbows which I know is a tender point has become unusable and Dr as put this down to tendentious rather than fibro and injected steroids in to in last night ouchy

PS thats for your replies yesterday, I was having a very low slightly dangerous day but defo feeling more up today x

13 Replies

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  • Weak muscles in bladder + increase in weight, sounds like an urgency problem, since I've had Duloxetine for Fibro, much better. I think you should go back to see the doctor about it, lots of possibilities. Tendonitis, inflammation, steroid injection usually helps. Welcome aboard. :) Tulip xx

  • I agree with dear tulips, I think you need to speak to your GP about this, though I do know you can get small weights which can be used to try and strengthen the muscles of your pelvic floor, but do please speak to your GP before trying anything, always the best plan ๐Ÿ‘๐Ÿป๐Ÿ˜ƒ๐Ÿ˜ƒ

    Foggy x

  • Silly me, I forgot to answer the second question ๐Ÿ˜ณ Yes, I have had steroid injections for tendinitis and my GP recommend resting my arm for three days after it, and I must say by that time the pain had decreased a lot if not completely on a couple of occasions.

    I really hope it works for you ๐Ÿ˜€๐Ÿ˜€

    Foggy x

  • Hi my love , you need to see a GP about this , he should then send to a urionics clinic , which I did last week , basically your bladder is getting neuropathy ( nerves in bladder over sensitive ) you need to be put on duloxtine 60 mg the urges should become less and the neck of the bladder should start to function again , again it's your fibro and connective tissue issues , have you been seeing rheumatologist? Or just GP ?

    Glad your feeling more positive ๐Ÿ˜€

  • Thanks Shadow walker, I'm gonna ask my dr about that drug as I have exactly the same symptoms... Also, after going I have to push to get the last bit out or it runs down my leg as I leave the loo. Poppyflower thanks for posting this question.

  • Hi, hope you dont mind me commenting on this question but Ive been getting the same problem with weak bladder for months. I was eventually diagnosed with fibro about two months ago as I have been having many symptoms. I am interested in whether having a weak bladder is a symptom of fibro. Im being sent to an incontinence clinic next. It is so awkward to keep needing the loo, I cant go anywhere. I can wear pads but they only help in the short term. Im finding out more and more about fibro. I can explain many symptoms as an effect of fibro.

    Thanks David

  • U also need to discuss this with GP , anything your body is now doing differently no mater how insignificant it might seem , keep a body function daily diary,it help you and your Drs to help you,from how your head aches to your little fingers aches and pains , sometimes are bladder can't empty as it should ,these things need keeping an eye on, I know have check ups every 8 weeks on this and I will be having bladder scans every 6 months ๐Ÿ˜”

  • Hello David

    You could also ask to be referred to a Urologist. Please see the comment I have made.

    I didn't have Urge Incontinence, just the Urge. I would have to go to the toilet for a wee approx once an hour.

    The tablets I now take have been a complete life changer for me.

    All the best

    PP xx

  • Hello all,

    I'm a lady with the same problem, except a tiny bit worse.

    Last month I wrote on here, how I woke in the middle of the night as per usual, and noticed I had wet the bed, not just a dribble, a complete bladder full!

    I was SO upset!

    I put it down to deep sleep, too much drink before bed, anything I could think of to make sense of this upsetting event.

    Then about 2 weeks later it happened again. Bed completely soaked.

    Went to see GP who sent me to A&E after waiting there for hours and hours. They decided to keep me in overnight in case it was something to do with my slipped disc many years ago.

    Had MRI scan next morning and then sent me home.

    I have an outpatient appointment next month.....oh joy!

  • Hi there

    You already have lots of good advice and I agree you should see your GP.

    To strengthen your pelvic floor muscles it is quite safe. You can do it anywhere anytime. All you need to do is to imagine you are on the loo having a wee. Then imagine trying to stop weeing. This pulls the muscles up. I hope I have explained that properly! Do that about ten times and hold it for a couple of seconds.

    You could also ask to be referred to see a Urologist. I had a constant urge to pee all my life right up until a couple of years ago. I saw a Consultant Urologist at my local hospital and he said I could choose from a small procedure or try a drug that is usually prescribed for men. I chose the tablets and haven't looked back.

    They are called Tamsulosin. They have also helped with the amount of Uriniary Tract Infections I was getting on a regular basis. Since being on these tablets I have only had one.

    I hope this helps.

    PP xx

  • I am so genuinely sorry to read that you are experiencing both of these issues and I can answer yes on both counts! I am under a Urologist as sometimes all I have to do is get up out of a chair and I need to go. As for my elbows, I also have arthritis and wear supports.

    As the others have said it may be best to inform your GP of these issues and ascertain what they can do for you. I want to genuinely wish you all the best of luck.

    All my hopes and dreams for you


  • Do go to your GP and mention the bladder issues you are having. There are several possible causes and they should be able to pinpoint what your particular problem is and refer you on if necessary. After tests and examinations my GP diagnoses an irritable bladder and prescribed Tolteradine for me, which I have found quite helpful. I've gone from having to pray I don't leak if I as much as think about going to the loo to being able to go for a reasonable amount of time between loo visits and only having to get up a couple of times in the night instead of every one and a half to two hours. As a lucky side effect, it's also helped reduce my IBS. Please don't be embarrassed. There is help out there xx

  • I too have had a couple of wet beds and was completely mortified at this.After also having lots of wet knickers during the day and forever washing and changing so as not to smell went to the docs.He referred me to physio for women's health and the outcome was diagnosed with urge incontinence.She advised tolteradone tablets that help you to hold more urine.I also have been advised to do lots of pelvic floor exercises and change coffee to decaf as the caffeine irritates the bladder.I too was really really embarrassed but please don't be at the hospital they were so lovely,the change is wonderful,I can hold it now for much longer and am not running like a maniac to get undressed before I wet myself.Hope this helps take care

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