I have just had access to my GP notes, as in the 80s I moved around a lot and was told at one point that my notes had gone missing, then at my last surgery which I left around 7 years ago, they had me mixed up with another woman of the same name at the same practice.
I went the other day to the surgery where the clerical staff were really lovely, as it has taken quite a while to get it organised, and was given all my paper notes to look through first.
All OK, I found out that investigations were done into Rheumatoid on numerous occasions due to my pains and psoriasis in the 80s and 90s. These came back negative, so could be through psoriasis? .Hormone tests done, thyroid done etc as expected (this was all from records predating my current GP practices). There were a lot of investigations done, so as my notes were summarised by this GP when they moved across to them, really only the important things had been left in there, but always discussed and written into the notes in a non judgemental way (which is as it should be). And it pieced together a few things for me. Some of the GPs writing was horrendous though and totally indecipherable!
However when I came to the notes from my current GP practice (where I feel I have problems getting treatments and investigations), the first letter I came across - from the head doctor of the practice - was a letter referring me for CBT, with the words "this lady is rather hypochondrial about her symptoms"!!!!!!!!! Not Good!!!!
I can tell you now, I never had a copy of this letter at the time, and if I had seen it I would have steered clear of her afterwards, with that opinion - IT WAS BEFORE REFERRAL FOR DIAGNOSIS OF FIBRO by a doctor there who left to work in France soon afterwards, who was interested in the condition. hte good ones always leave the country.....
I haven't had access to the rest of the notes yet as they are on computer, but I am making arrangements to access them in the next few weeks. I haven't told them why, other than they know I have been mixed up with someone in the past. This other lady had mental health issues (like me, but different things to trigger) and also heart problems, so I need to see if this is clouding judgement, but that letter gives me reason to think that something may trigger a knee jerk reaction whenever I try to get referrals etc, when they access my notes.
I saw a new doctor a few months ago and he more or less told me I was "Someone who liked to see results".mmmmmm
??? What are other peoples OPINIONS, ADVICE and EXPERIENCES with this?
ALSO .....I am considering moving GPs. ??? Does anyone know if we are entitled to ASK GP practices what their general knowledge is on Fibromyalgia BEFORE we make the decision to join them?