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Fibromyalgia Action UK

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Josie1973 profile image
13 Replies

Hi everyone I'm new on here,I also suffer from fibro,what a nitemare I fully understand what people are going through just wish my docter would help more he changes my medication often yet nothing helps makes my depression worse.sick of some people who keeps telling me its in your mind

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Josie1973 profile image
Josie1973
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13 Replies
Betty67 profile image
Betty67

If all in your mind means you are making it up then i am sorry that is not true. Think how much easier life would be if we could think ourselves better. You are a super human and your super power is to feel pain more than the average person.

Pacing is the most important thing to learn and to be nice to yourself. Welcome to the site and gentle hugs.

georgiagirlamy profile image
georgiagirlamy in reply to Betty67

OMG! That statement is so true and I am NOT good at pacing myself I end up having a good day wear myself out and then I'm down for 3 days the vicious cycle if you don't learn your limits I've had it for 4 years and I'm still trying to learn my limits.

Ginsing profile image
Ginsing

Welcome you have found yourself in a very good position. This sight is brilliant it is made of lovely people all sufferers looking for sympathy and answers if posss. With the serious side comes the side where we entertain each other with anything from silly stories to altro interesting outings which are indeed nothing more that=n virtual.

Do join in most welcome also check out our regulations please we are only strict about peoples care and no swearing so read through the articles on the right hand side.

Take a look at Health unlocked .com and also FMAUK may offer some insights.

All the best looking forward to you posts all ready

Ginsing

FMAUK administrator volunteer

georgiagirlamy profile image
georgiagirlamy in reply to Ginsing

Hey thats what I was trying to say but I'm in a flare up and I tend to ramble.

georgiagirlamy profile image
georgiagirlamy

Welcome to the group. I have found that this is not a group of people that just sit around and complain about what hurts on their body but actually it is a combination of people that have the same diagnosis and it is so new to the medical field that we are the ones leading the way to a cure by being consistent with our complaints and the more we tell people about it or if we hear an idiot say that it's all in your head have them come live with you for three days during the flare up or tell him to go to webmd.com or the Mayo Clinic in the United States they've been studying for 30 years and believe me it's usually Type A personalities that get it and there is a trigger that causes it to begin. So far no meds have helped me 100% yet. I sometimes feel fibro has taken my life away from me being the same mother, wife, sister and daughter I used to be, but I have to suck it up and we have to deal with the cards we are dealt and everyone on this site is always doing something or saying something that makes me feel better about myself everyday. just someone that puts a reason for us to laugh. It's like we are all connected and need each other. Everyone in my family and my as were so tired of hearing about what her mommy everyday I was pushing everyone away from me here on this website I feel when I share information I'm helping somewhere so welcome. We will be here for you. Amy

rosewine profile image
rosewine

Just to say welcome to this supportive site. As others have said it isn't all in the mind if it was we could all just wish it away. So many never had depression or anxiety before they had fibro it is the fibro that has worn them down.

You will normally find someone on here who can help.x

Josie1973 profile image
Josie1973

I do appreciate all your kind words and I am glad I found this site,thank god people understand the pain we go through,I'm a mother to 4/kids but I do try my best to force myself with so much pain it is worse in the mornings, I struggle to get up I've got a twin sister who has got fibro,she was the one who begged my docter to get me help,I was told its stress.now I know why I've been in pain,does anyone else on here lose concentration or forget things or that is just me x

Betty67 profile image
Betty67 in reply to Josie1973

Do bear in mind that stress either physical or mental is a trigger but not the cause , however do all you can to reduce your stress.

georgiagirlamy profile image
georgiagirlamy in reply to Josie1973

Definitely we forget. Especially short term for me. That fibro fog.

Poppy-poppy profile image
Poppy-poppy

Yes cannt remember my own name at times, just try to go with the flow and it is almost impossible for you to try not to over do things but try to be kind to yourself and have you time sometimes in the day, best wishes.

milo4 profile image
milo4

Hi and welcome to the site, I have only been on this site for a few months, but would be lost without my fibro friends,they are lovely as i am sure you will find out

Trace x

TheAuthor profile image
TheAuthor

Hi Joise1973

Welcome to the forum and it is wonderful to make your acquaintance. I sincerely hope that you find the forum useful, informative and loads of fun! I have pasted you a link to our mother site, Fibromyalgia Action UK which hosts loads of useful Fibro information:

Fibromyalgia Action UK

fmauk.org/

I am so genuinely sorry that you have such a dinosaur of a GP, and I think I would either try a different GP at your surgery or maybe change to a new surgery? It does beg the question however, if it is all in your mind why would he think that prescribing you medication will make any difference? I want to genuinely wish you all the best of luck.

All my hopes and dreams for you

Ken

denvajade profile image
denvajade

Hi there I understand I have fibro, RA stomach and bowel issues and loooooooooong standing depression. I find that I need a balance of anti depressant, not too much or I get worse and end up with anxiety1/2 to 1 tab morning and night. Wishing you well.

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