silly time to be up: Oh well its silly... - Fibromyalgia Acti...

Fibromyalgia Action UK

59,987 members67,154 posts

silly time to be up

kathlaidlaw profile image
7 Replies

Oh well its silly o'clock and I am up , its silly o'clock and I am up, watching silly tv its silly o'clock and the world sleeps . the world sleeps and I am up .

my eyes water and wish to sleep my eyes are full of sand and wish to close to sleep . my body sits wishing to sleep to rest to dream , to dream of times gone by when I walked ,when I danced when I worked . shit I am getting far to deep shows what fibro has done to me it has made me in to someone who stands on the edge of life the edge of being. its time I crashed life and I am going to tomorrow promise tomorrow I will walk tomorrow, I will dance tomorrow I will sing tomorrow but tomorrow never comes . tomorrow will pass me by tomorrow will leave me sitting saying , I will try tomorrow my eyes will scream sleep my life is run on tomorows but tomorrow never comes . BUT I will make tomorrow come I will get tomorrow a grab it and hold it tiet I will sing , I will love and I will hold on to every tomorrow and the next and the next I will shout out lowed fibro I have today and you can't take that away today is me tomorrow is you and you can have tomorrow and I will have today

Written by
kathlaidlaw profile image
kathlaidlaw
To view profiles and participate in discussions please or .
7 Replies
TheAuthor profile image
TheAuthor

That is such a sweet and endearing poem and I can only say that I am so genuinely sorry that you cannot sleep again. I sincerely hope that you manage to eventually float away in to the land of lullaby.

All my hopes and dreams for you

Ken

mattoid-mags profile image
mattoid-mags

Join us wide awakers @ the supper club x

cathy21 profile image
cathy21

That is poetry in motion my foggy friend :-$

Please do join the ground hog day reunion for supper

Hugs xx

Peter55 profile image
Peter55

Sorry to hear about your sleeping problems. Up until Sunday Just gone, I would go to bed at 11. Feeling exhausted, then just lie there staring at the ceiling until about 5 am when I'd finally nod off. I'd get up not feeling like I'd slept at all. Then at 2 pm I'd crash!!! A two hour catnap which made you feel worse when you woke up than before you went to sleep. I used to do the same as you. Downstairs telly on and watch until my eyes started shutting. Then I'd very often just stay downstairs and sleep on the settee. If I went back to bed I'd have woken up again!!!

I used to put the telly in smart mode and watch music videos on YouTube

I was in mid flare last sunday, and went to bed at 10:45. And took a nytol instead of the zolpiderm the doc prescribes for me apparently you build up a tolerance and they will only work every night for about 2 weeks. Any way I laid down and slept like a baby until 5 am. Which is ideal coz I can take my morning dose of hydrocortisone then. Then I went straight back to sleep and woke at about 9:30.

And..........no pain!! The flare had gone without me taking any extra medication

Now 4 days on my aches and pains have disappeared. Makes me wonder if my own shrivelled up adrenals have started to work again.

I've got a cortisol curve test tomorrow

9:00 blood test before taking morning dose. Then take morning dose. Then 10 am another blood test. Then at 3pm another. So if there's cortisol showing in the 9 o'clock test then there's only one place it could have come from. And that's me!!

So I'm hoping. But a flare which normally lasts 2 weeks, stopping after 2 days. That just doesn't happen!!!

Hope you get your sleeping problems sorted coz after a while it really gets you down. I had been having sleep problems for about 5 years until this so I know what you're going through. My inflammatory illness has not been diagnosed yet but CFS is favourite among the nurses.

All the best

Pete

Peter55 profile image
Peter55 in reply toPeter55

Ps my dose of HC is now at 20mg

So 5mg to go and I'll be at normal levels for the average person. I start on azathioprine in just over 2 weeks. Unfortunately it takes about 3 months to become fully effective. But if I get any pain before that, I'll have to go on a small dose of morphine. About 20mgMR tablets.

ninjananna profile image
ninjananna

Wow! You certainly hit the nail on the head with that!!!

I think we should definitely have a "Silly O'Clock" group, for the ones of us who have trouble sleeping... :'( :'( :'( I'm hoping that you are having a "you day" and not the fibro one!...much love... Ninja...♥♥♥

ClaireRyman profile image
ClaireRyman

Yes - I'll join the silly o'clock club. Have you tried magnesium oil spray?

xx

Not what you're looking for?

You may also like...

silly o'clock club

so be it peeps it is the silly oclock club where you can dance sing shout scream we can go fishing...
kathlaidlaw profile image

Am i safe enough to be left alone?

Hi friends, those of you who have read my previous blogs will know that my poor fibro battered body...
charlii profile image

A TIME TO REFLECT

As a Fibromyalgia sufferer I do not want your sympathy, I just want you to understand who I am...
soulsusie profile image

Another year,Still fed up, still no answers

still waiting for docs to say its fibro. Our doctor doesn't believe fibro is actually a...
Moody-mum profile image

Weird fibro symptoms/issues due to fibro

Hi everyone,Hope you are all feeling as well as possible 💛 I was wondering if anyone else has...

Moderation team

See all
Hazel_Angelstar profile image
Hazel_AngelstarAdministrator
Lynda_FMA_UK profile image
Lynda_FMA_UKModerator
Sarah_fmauk profile image
Sarah_fmaukModerator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.