pain when touched: Do you a get pain... - Fibromyalgia Acti...

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pain when touched

justmai profile image
16 Replies

Do you a get pain when your touched I am asking this because I don't.

don't get me wrong I am in severe pain most of the time in my back legs and elbows sometimes feel like screaming the place down. But never get pain simply by tsomeone touching me.

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justmai profile image
justmai
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16 Replies
Regnofibro1 profile image
Regnofibro1

At times I do. It just depends on the day! I think I have every symptom at some point but not for sure. Today I feel out of it sorry.

caninecrazy profile image
caninecrazy

yes, I too have been experiencing this. for the last 3 days my right forearm is incredibly painful at the slightest touch. had it on my upper arm last month. I assumed it is fibro/lupus. I will read other replies with interest. hugs x

BaffledKaffy profile image
BaffledKaffy

Certainly, justmai, we don't have to experience all the symptoms of Fibro to be diagnosed as having it, if that prompts your question.

I don't personally have that issue either ... but it's not to say it won't appear tomorrow, next week, or next month for either one of us. This disease (I know, I KNOW, everyone ~ it's "syndrome") is absolutely horrible no matter how many (or how few) of the symptoms we exhibit. And I'd hope it's never a requirement to have all the symptoms listed for Fibro before they'll diagnose it ~ OMGosh ...

clare_hart profile image
clare_hart in reply toBaffledKaffy

PS, Off-topic.

FM needs to be defined as a disease so that it will be taken seriously. In February of this year, that was done, but from what I have found out in my limited way, the word hasn't gotten out. It's been a topic here before, but IMHO, bears repeating.

It's been named SEID, Systemic Exertion Intolerance Disease (yeah, it's a mouthful, but it was the best they could think of to encompass a diagnosis)

Here's a link you may find interesting

rcbm.net/behavioral-medicin...

I've printed out some of the articles and links for the next doctor that sneers (no matter how sublty) at my fibromyalgia.

maggi999 profile image
maggi999 in reply toclare_hart

Just a little point Clare.

The attached article refers to Chronic Fatigue Syndrome, not Fibromyalgia and my understanding is that they are different syndromes, although there is some overlap.

clare_hart profile image
clare_hart in reply tomaggi999

I understand and should have been more clear. CFS/ME are discussed with this quote from one article:

"It’s the disease that dare not speak its name without tripping over one of its other names. Call it what you will – chronic fatigue syndrome (CFS), myalgic encephalomyelitis (ME) or its latest, Institute of Medicine-sanctioned designation, systemic exertion intolerance disease (SEID). It’s very real, affecting between 1 million and 4 million people in the United States alone . . . "

BlueMermaid3 profile image
BlueMermaid3 in reply toBaffledKaffy

Hi bk. The only reason I personally stress syndrome is to try to explain that it is not just one symptom, that's all 😊

Illness, condition, disease who cares - it's horrid xx

stumpedok profile image
stumpedok in reply toBlueMermaid3

Recently I have started referring to my "Fibro illness " as I've found that people understand the word "illness" better than they do "syndrome ".....not technically correct but in getting others to understand it I'm finding this shift in terminology helps....bit like the shift from the terminology of 'chronic fatigue syndrome 'to 'ME'....given that everyone seemed to think they knew what 'fatigue' meant not appreciating that this 'fatigue 'was nothing like the tiredness experienced by a healthy person!

Sometimes the language we use can make a big difference. ..and is much more than just playing with words or 'splitting hairs'.....I'm all for anything that helps no matter how seemingly small!

BlueMermaid3 profile image
BlueMermaid3 in reply tostumpedok

Wholly agree with you 😊. I meant I say syndrome on the forum when explaining an answer to something.

In person I just say I have Fibromyalgia.

As you say, whatever works - I'm all for it too 😊 xx

BaffledKaffy profile image
BaffledKaffy in reply toBlueMermaid3

Me, too ... I was hoping to be a bit *light-hearted* 😉 when I first said what I did (saying "I know, blah blah Disease vs. Syndrome).

I'm with you ~ If anyone presses me in a conversation, I usually just say I have Fibromyalgia when referring to my problems and then add whatever else might specifically be affecting me at the time, such as a horrid migraine, severe back pain, etc.😥

It doesn't matter to me the reference/name, I just want docs to know and recognize it.

BlueMermaid3 profile image
BlueMermaid3 in reply toBaffledKaffy

Absolutely! It completely confounds me that some doctors do not recognise this illness. How can you be formally diagnosed with something that doesn't exist 😳

It's completely beyond me 😁

justmai profile image
justmai

I was told I had fibrosis 7 years ago but most of my symptoms don't fit yet they still insist that's what it is

just recently found out that most of my tendons and muscles are on the wrong place as are some of my organs but they don't seem to want investigate that and why that could be and if that's why I am in so much pain

justmai profile image
justmai in reply tojustmai

That was meant to say fibromyalgia not fibrosis, stupid predictive text on mobile phones lol, I don't think I have fibro, my go doesn't think I have fibro, but that's what I was Dix with,

But it all started with a problem with my right leg and blurred vision a few months after having a gallbladder operation and severe infection shortly after my then fiancé was killed in an accident,

All I know is that each year it seems to have progressed to the point I am nearly bedridden now, I am 47 and have no life and I want it back.

TheAuthor profile image
TheAuthor

It depends where I am touched? I am very pain sensitive on my wrists and forearms especially. I want to genuinely wish you all the best of luck.

All my hopes and dreams for you

Ken

josieb profile image
josieb

I get very sensitive, especially on my back. It's hell if one of kids wants a cuddle. It's taken years to learn not to grimace and unfortunately they've learnt to check before spontaneous cuddles. But people who don't know me can touch me as they squeeze past in queues etc and can leave me in pain for hours. Very gentle hugs x

MariLiz profile image
MariLiz

Sometimes yes, it can be very painful, although I have found going for a massage is helpful. It seems to relax everything and leave me pain free for a few days. I always get the best night's sleep after a massage. MariLiz

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