Will today was good for me. I didn't have to much pain today. My fiance and I we had to do some things today. When we got back home I was really tired. I was sleepy earlier tonight. Now I am not as sleepy. I hate it when I don't have a normal time to go to bed. It is getting to were I can't wear paints anymore. Because my skins feels like my skin is burned bad by the sun. I can't cross my legs because they hurt my bones. I have more things is going on with me. The picture I added is my fiance. His name is Jorge Sardiña. He takes care of me when I have a bad day if he is at home. When he does gets hone from work then he makes sure I don't need anything. I am thankful to have a good man that I have.