PIP: Hi all, on the 7th May I had a... - Fibromyalgia Acti...

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Malwimmy27 profile image
17 Replies

Hi all, on the 7th May I had a face to face assessment at home. Yesterday I phoned up to ask to have a copy of the written report. I was informed the decision was in the day before. I was asked if I wanted the decision over the phone. Thankfully I've been awarded high rate for mobility and care. I feel I'll now be able to start planning my future.

I hope that any of you going through this process get the decision you need and deserve.

Blessings to you all, Becky xx

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Malwimmy27 profile image
Malwimmy27
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17 Replies

I move to PIP in February when my DLA expires. Am really scared of losing my award, even though I have been on High rate renewed every 2-3 years since 1997. My mobility is so poor and my care needs are still great, but I had a poor experience moving from Incapacity to ESA and had to get my MP involved. Funnily enough I renewed my DLA in that time without a medical and it went through alright, which helped the decision maker with my ESA claim. I know I have really bad difficulties, but the horror stories and this government's war on benefits makes me very nervous.

I have a lot of other conditions now and my various consultants say I have "real fibromyalgia" as I have really bad spasms that they can witness and am on Tizanidine twice a day to ease them, even though it doesn't stop them.

I am pleased your appraisal went well and you got what you needed. This positive story gives me hope.

dondons99 profile image
dondons99 in reply to

Hun I really wouldn't worry, it seems that you more than qualify for the benefit and you won't have a problem ok sorry to hear that you are really suffering with other health problems it bad enough having fibro

Please take care xxx

in reply to dondons99

Thank you. I am a lot better than last year. I ended up with gallstones, carpal tunnel surgery that only partly worked and left me on morphine, diabetes and hypertension. It was a pretty rough year. But my GP was the most wonderful woman. She put me back together again with the hospital. Unfortunately their practices went into bankruptcy last week and we have been taken over by the Royal Hospital until next year. It was widely publicized yesterday when the take-over happened. Caused by the lack of GPs and a huge locum bill that bankrupted them. It is such a shame that decent practice should go under like this. 27000 patients they had in 5 surgeries and 2 have been shut down.

Malwimmy27 profile image
Malwimmy27 in reply to

I'm sorry to hear you've had such an awful time. I'm also glad my experience has given you hope. Please try and stay as positive as you can, they appear to have got their act together a bit more now. Hopefully you'll have an assessment at home as your mobility and spasms are so bad. I wish you lots of luck with your future assessment. I think it is bordering on criminal the way the Government make claiming benefits so awful.

Janebig9 profile image
Janebig9

Hi well done on your assessment going well, I am so nervous and scared about having mine as many people don't believe something they can't see, ime thinking of asking for my face to face at home to , I have fibromyalgia and depression, can't I ask Wat to expect as ime very panicky all the time thinking about it , gentle hugs to you ☺

in reply to Janebig9

Hinthete

I had my assessment about 2 weeks ago and it wasn't anywhere near as bad as I thought it would be. I was in so much distress even getting into the room with the assessor that she was worried we wouldn't be able to complete the assessment and said she could stop and arrange to be seen at home.

She seemed very nice and asked some probing but relevant questions to my claim.

She asked nothing about mobility and I didn't have a physical assessment - she didn't ask!

I have no clue what the outcome will be but I've asked for a copy - the DWP didn't have it yet as of yesterday.

I'm hoping to get a positive decision. Remember that the assessor isn't the decision maker and to focus on the help you need and the difficulties you face not just how poorly you are 👍🏻

Good luck x

dondons99 profile image
dondons99 in reply to Janebig9

Hi Hun me like you also suffer with depression and anxiety, I was really scared, but the young man I saw was so nice, he was gentle understanding but just be yourself tell them your struggles and pain, take someone with you, don't try and hide the pain let them see how hard it's is with every day life,be honest. They do ask a lot of questions but they do need to, don't be offended when your answering the questions that they are tapping away on computer, tell them about your daily struggles I had to do some gentle stretches but I couldn't do them that good, they do say you don't have to do it, but I tried all of what he asked so he can see how hard it is for me to do it, but I didn't have a medical or anything that was horrible.

Good luck let me know how you get on

You will be fine ok xxx

Janebig9 profile image
Janebig9 in reply to dondons99

Thank you that all sounds reassuring, I will take my daughter with me , and hopefully I get a nice person to, I will let you no how I get on , fingers crossed ☺

Malwimmy27 profile image
Malwimmy27 in reply to Janebig9

Please do let me know. L assessors should be like the one I had. If I could get her to see everyone somehow I would. I'm sure you'll be fine. I think it's good that you're taking your daughter with you. If you want it recorded let them know in plenty of time. Just be aware that there is a possibility that you'll be observed walking into the place you'll be aseessed in.

Good luck Janebig9. X

Malwimmy27 profile image
Malwimmy27 in reply to dondons99

Thank you for your reply. Thankfully it went really well. The lady who saw me could see I was in pain just sat in the chair. I did the stretches and movements the best I could, at one point I nearly fell in the fire place. We had a good laugh about that.

I've been awarded high rate mobility and high rate care.

TheAuthor profile image
TheAuthor

Congratulations, that is absolutely wonderful news.

All my hopes and dreams for you

Ken

Malwimmy27 profile image
Malwimmy27 in reply to TheAuthor

Thank you Ken. I just wish everyone could be assessed by the lady who saw me.

Hartleyhare2 profile image
Hartleyhare2

Well done for getting what you DESERVE! We shouldn't have to live in pain and fear of the dreaded brown envelopes.

Patrick 😀

Malwimmy27 profile image
Malwimmy27 in reply to Hartleyhare2

Thank you for your reply. Yes I agree. I just wish I could get everyone to be seen by the assessor who visited me. She was so relaxed and she listened to me and took things at my pace. I think all assessors should be like this.

Offcut profile image
Offcut

Well done

Sheendog profile image
Sheendog

Brilliant news, well done x

Lesley61 profile image
Lesley61

Well done

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