Memory issues

Just over 2 years ago my husband noticed my memory was getting worse. Not just typical memory issues but forgetting whole conversations bearly 15mins after, forgetting people, becoming confused, speech problems. I know these sound typical for the fibromigits out there. For me, I'm dyslexic, I've always had a poor memory and I have been diagnosed with fibro for years, these symptoms where new.

I went to the doc with my hubby as I did not know I was forgetting stuff. Anyway off to the memory clinic the first time. I was eventually diagnosed with, after loads of tests over 6months, with cognitive impairment.

So 2years later things seem to be a bit worse and in truth the diagnoses didn't seem right. I was referred back to the memory clinic. This time with a brain scan. The out come. The psychological tests only show a slight deterioration but noting major. What is worrying is the brain scan which is showing an image of deterioration which if I was elderly, I'm only 42, they would diagnose as Alzheimer's.

Because of my age and I'm not displaying lots of symptoms they do not want to make a diagnosis. I now need to wait 12 months for a repeat scan to see if there is any further deterioration.

I'm really scared.

8 Replies

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  • Hi Cnedra73

    I can imagine you must be worried. I'm sorry your're having problems with your memory. I know it's easy to say but try not to worry too much as stressing over it can muddle your mind more. Sometimes finding someone to talk things through with, who can help you with some of your fears, is better than. Imagining all sorts. On the positive side, your symptoms at this stage are few and the medics are not suggesting any further treatment at this stage. See if you can get some cognitive therapy and help through gp from memory centres. Being positive and armed with coping strategies puts you in better control of it. Don't allow it to define you - take ownership of it. You can do it.x

  • That must be horrible, I have memory issues and cognitive impairment but not to that degree.

    Id be very tempted to ask again if there are any treatments available, or look to complimentary medicine. I've seen research in using coconut oil for cooking (I wouldn't have thought that it would harm to try - I use it myself and it doesn't taste of coconut) or have a look on the Internet for suppliments such as fish oil that could help.

    There may be practical therapies available in your area, your GP might be able to help or there is often a list of support services on your local council/NHS website.

    I hope when you go back they are able to give you a more concrete diagnosis and treatment to prevent further issues.

    Best wishes

    Clare xxx

  • sorry to hear you are having problems Cnedra.

    Have you seen a neurologist? they might be able to offer help and advice.

  • I am so genuinely sorry to read this, and I sincerely hope that you can find some resolution to this. I want to genuinely and sincerely wish you all the best of luck.

    All my hopes and dreams for you

    Ken

  • My heart goes out to you as we all know how the fibro fog feels to us. My personal recommendation would be to do a heavy metal detox, remove amalgam fillings and take 3 tablespoons of coconut oil a day. There is a doctor Mary (forgot the surname who improved her husband Alzheimer quite a lot with coconut oil) Add omega 3 oil to your regime. Lithium Orotate 20mg (compounding pharmacy) per day also chelates heavy metals from the brain and helps fibro. Try and not stress too much about it as it will make it worse. Please google all the suggestions I made so that you fully understand them. Sending blessings & hugs.

  • My husband, is having similar issues and is awaiting a brain scan. The neurologist he saw thinks it's linked to methotrexate which he is taking for RA. I really hope things improve for you. My husband gets frustrated with the issues he has and it's hard for him to cope. So I feel for you and your husband, not easy xx

  • Hmm, don't wish to sound unkind but Alzheimer's is no respecter of age.

    Added to which I'd been given to understand there's no medical test, so I would doubt the scan except a much more qualified person than me said so.

    While waiting for the next scan how about taking up that other suggestion about CBT and/or neurologist? There's no guarantee but its surely worth a try.

  • Hi Cnedra, I'm so sorry to hear you have this worry hanging over you. Has your doctor ever tested your B12, ferritin and folate levels? I'm only asking as this can be implicated in mental confusion if the levels fall very low. Do please ask to have these tests done. Best wishes MariLiz

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