Fibromyalgia Action UK

FM, CF , chiari 1 malformations

Hi everyone,

I am not so proactive in writing a post as my condition getting horrendous each day and unable to sit for a lengthy time, however I read your news each day, I have never heard any one suffering from Chiari 1 Malformations, as the specialists thought it was my FM/CFS which keep giving me constant migraine (headache).., but after being passed and stayed at the hospital for over 3 weeks and have had another brain tested, they told me that I have Chiari 1 malformations, no wonder drugs treatment just did not have effect on me at all. I am now taking no drugs at all, so can you imagine the excruciating pain I face on daily basis.

I just wondering if you know some one or have had experiences with what I have got , can you please share with me and let me know how do yo cope with it?

Thank you


1 Reply


I am so very sorry to read that you are not on any medications now and that you are suffering and struggling so much. I genuinely cannot remember if I gave you the NHS Choices cache on this last time? So I have pasted it below as it discusses treatments further down the page:

I want to genuinely and sincerely wish you all the best of luck with this.

All my hopes and dreams for you



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