Fibromyalgia Action UK
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A little update

Hey fibro-family!

Recently had a meeting with work and I'll be returning on part time on the 2nd of April. It's either that or lose my job. It's been 2 months and I'm still awaiting an appointment with occupational therapy.

Needless to say I'm quite terrified, to say the least. Doctors don't want to give a diagnosis until I have seen the occupational therapist 😞

I've had a bad run with the pain the last 2 weeks, so haven't been on here much. Broke down crying like a banshee the other day to my fiancé. Bless him.

Trying to get some things done around the house today, which is proving very difficult. I will soldier on though because it needs to be done.

I hope everyone is feeling the least amount of pain possible!

Soft hugs,

Cushmonkey x

8 Replies

Hey lovely, ive just been diagnosed, due to hospital emergency pain control admissions I had the opportunity to force a meeting with the OT. so my advise is to be strong and be a annoying fly. I mean this by bugging them until they sort it out x I myself am going to have to go back to work part time while finishing a degree so Know how you are feeling. so im giving you the advise my BF's mum gave me. You'll do fab and things always work out x


Hi Cushmonkey, Thanks for the update. I have been wondering how you are getting on. Does part-time work feel okay to you? (I realize you have no choice in order to keep your job.)

I think it's great you can cry and can fully express yourself with your fiancé.

Thanks for the update. You cross my mind often.

In Support,



This is the big dilemma, or Hobson's choice. I suppose it's better than nothing and I hope all goes your way. Try to look calm even if your not. I don't think it will help to be on edge. Good luck :)


Wishing you lots of luck and hoping you feel a little better. Try not to overdo it. Crying is ok, sometimes only tears will do xx


Glad that you have updated us. I know it is a big step trying to go back part time but worth a try. Do the doctors know there is a likelihood of you perhaps losing your job if things aren't sorted soon. I know when I was having acupuncture the physio there was pushing for scans for one of her patients as she was having to have alot of time off work because of unreasolved pain and had the likelihood of losing her job and they agreed to to it as a priority.

Best of luck with everything, forget things around the house and jsut be gentle with yourself. Let us know how you are getting on even if it is only a couple of words.xx


I have mentioned that I will be losing my job for the past 6 months but nothing has been sped up. The doctors only sympathised that in the current climate I do need to return for the money purposes but still don't agree I should be working.

It is a bit of a sticky situation. All I can do it try, the only other option given by work was early retirement but I'm only 23 so it doesn't apply to me 😂

Seriously thinking about applying for pip xx

Keep well everyone x


I just wanted to wish you all the best of luck with your return to work, I sincerely hope that it all goes really well for you.

All my hopes and dreams for you



Hi Cushmonkey,

You sound really stressed and I'm really feeling for you because I've been through this and continued to work full time for five years then part time for one before finally accepting redundancy because my body just couldn't take it anymore and I think my organisation had just about got to the end of their tether as well.

I'd had numerous chunks of sick leave and been taken through the sickness process so many times I became an unofficial source of advice and support for my colleagues.

My only confusion is why your doctors are waiting for you to see the occupational therapists before giving a diagnosis? I don't understand as it would seem to me that your doctor should be able (with the help of specialists through referrals) to give a diagnosis that will be referred to by your company's occupational therapist when they see you.

The role of occupational health is just to ensure that you are able to undertake the role you've been hired to perform. I agree with the person who said you should push hard to get seen by them as soon as possible but it's not clear to me why their recommendations were not taken into consideration when you had a meeting with your company and they instructed that you return to work part time or lose your job.

From a purely HR point of law, it would actually be wrong of your company, knowing you have a health issue, to force you back to work before you're ready without taking into full consideration what you are able to undertake without incurring further injury or ill health, basing their decisions on the recommendations of your doctors and assessment with occupational health/therapist. I know some company's do but it's actually wrong.

Did you have a union rep with you at your meeting with the company? It may be useful to get some advice on what your rights are before falling into line.

Wishing you the very best. Trust is important but verification of facts is essential.


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