Hi, I'm new to your forum and have enjoyed reading some of the posts especially as they make me feel quite 'normal.' Like everyone here I've suffered with varying degrees of pain over the years; migraine since I was 16, RLS, spondylolisthesis. Many years ago a GP told me I had Fibromyalgia and all he could tell me to take was paracetamol for the pain and learn to live with it. Which is basically what I've done, then I had back problems which was initially attributed to 'well we all have back trouble from time to time,' and prescribed amitriptyline and other pain killers. To cut to the chase, I eventually saw a neuro surgeon who diagnosed spondylolisthesis along with other spinal conditions and I've since had 2 spinal operations. Consequently when I visit the GP any pain from the waist down is put down to my back problems and other pain has also been blamed on this too as 'referred pain.'
I still take morphine as and when I need to and try to take it as little as possible, saving it for when I absolutley can't bear the pain/discomfort any longer.
Recently when I went to see my GP she told me that the pain I'm having is "Fibromyalcic pain" she said "there's no magic pill that I can give you which will help and referring you to a rheumatologist isn't an option as they only see patients occasionally in extreme cases as the drugs they use to treat the condition are extremely powerful and not what you really want to be taking. (!!) It's not something which is easily diagnosed and I don't like to put this label on it as there is no cure for it, it's a matter of lifestyle adjustment." She went on to say that I should let the physiotherapist and occupational therapist at the Pain Clinc I attend know. (Referred to Pain Clinic for generalised pain resulting from spine/migraine/CTS etc.) I left the surgery feeling stunned tbh. If my own doctor can't help me what hope do I have? I know it's something which isn't cureable but surely I should have the support and 'extertise' of my GP. Have thought I maybe should make an appointment to see a differnt doctor in the practice.
Apologies for the very long-winded post!