hi everyone .Booked holiday to Portugal at xmas as had such a rotten one. I am supposed to go in 2 weeks but the thought is making me sick. The travelling is the worst as I am all in by time I get to airport. I get assistance but I am so very tired and sore it seems like a nightmare. Want to go as feel I am giving up on every thing in life Maureen
holiday plans: hi everyone .Booked... - Fibromyalgia Acti...
holiday plans
Hi mo, I am so sorry you are feeling so awful. I hate flying, did I say I *hate* flying. Everything about it gives me anxiety. OTOH, it is better to go if someone does all the work and I just go, sit, get on, etc. Even that sucks . . .
But maybe this is not the time for you. IDK what you could do to compensate for not going. You may be in a flareup. You might wait for another time when you could really enjoy this when you feel better. I know what it is to give up something you are happily anticipating. But it sounds like you really dread the trip.
Maybe that dread is actually causing you anxiety and making the trip seem worse than it might be. Maybe that is increasing your pain as happens with stress, anxiety, depression.
Whatever you decide, I hope so much that you are feeling better soon. We do understand and we empathize.
Think of the warmth of when you get there, the good memories you will have. I really do encourage you to go, and if possible put up some holiday pics we'd like to see them. Enjoy your holiday xx
Dear mo1mo2, i understand your fears, i am in process of app,ying for passport in the hope i can go abroad. Have not been anywhere furter than town in years. Scared of pain of sitting, pain and stiffness from not moving,exhaustion and likelyhood of migraine from noise and lights. But determined to try for sake of sunshine for a whole week ! I do hope you can make it, and come back and tell us how you got on .good luck
Hi Mo I would take the plunge it will probably be less than you expect or fear I work for BA and usually go away a lot but since been diagnosed 4yrs ago have been anywhere but last sept decided to take the plunge and went to Orlando went to family was in bed first to days but still managed to get out in the sunshine walk down to social club and eventually get in the swimming pool it was 94% everyday a bit too much for me anyway go get the airport nice and early have breakfast and relax before you know it it's time to board and you can ask for priority boarding so you get on before they start brooding everyone else! or if you can afford what
T I do sometime is book a hotel near the airport that runs a shuttle bus to the airport and go down from the night before anyway rest up when you first arrive if they don't do room service get someone to bring you breaky in bed for a day or two and by the afternoon you probably feel up for a little wander take it one day at a time, and when you do feel great I'm glad I'm here don't over do it still take it easy hope this has helped you a little it's my first time on here I just registered after reading your blog God bless Dee
Go, go, go. Please take all your meds and do everything you can to go. You won't regret it.
My daughter took me to Barcelona for a long weekend last year. I was terrified that I wouldn't cope and would let her and myself down. I was convinced I'd ruin her holiday and she would never want to travel with me again. What actually happened was so different.
She'd taken all my limitations into account with regards to seat bookings, getting to and from the airport, rest areas, timings, schedules when we got there - the works. She even had a quiet word with airline and coach staff. Just brilliant.
One of the things I wasn't expecting is that she left me to sleep in the day we arrived and organised for a plate of breakfast to be left for me by Front Desk Staff after explaining my condition. It brings me to tears thinking about it. I paced as much as I could. Didn't miss out on too much and enjoyed every precious minute with my girl.
Not going will be to let yourself down. You've got this far and you're still standing so push and challenge yourself to go that little bit further. You won't regret it.
All the very best. Enjoy!!!
I know how you feel. I've been wanting to book a trip to somewhere warm, but I was diagnosed with RA about 3 years ago. Long story but...things got bad last fall and though I'm fairly stable, I'm scared to go anywhere. For now. I'm trying to go with the flow and will look at it again next fall. I guess you really just have to evaluate how you are at that current time?
The only way to get through this is think of what awaits you the other end, delightful just enjoy it and take something to knock you out for your journey!
I am so sorry to read that and I sincerely hope that you have a wonderful time and that your pain levels drop for you whilst away.
All my hopes and dreams for you
Ken
thanks a lot