I have now had this condition for around three years which I know to a lot of you isn't very long at all but to me it seems a long long time.
But I have found over the last couple of weeks all I seem to do is complain about different things that have happened to me. I used to be a very positive person but try as I might i just can not seem to stop.
My dishwasher stopped working 3 1/2 weeks ago and at long last the engineer is coming on Saturday to fix it, it will be 27 days since I first reported the fault, I did leave it till 2 1/2 weeks after being told the part would only take a couple of days to come in,before I started to ring and chase them, only to be told half the time " that I do not exist" and the other half the engineer has the part and will be ringing to make a appointment. It did seem strange that although nobody could get it done any quicker if it had got to 28 days I would be entitled to a new machine!.
The pharmacy which I have been using had "lost" or as my mum was told" never had my last prescription "even through it was sent over electrionally ! So she went off to my sisters with me not having the tablets I had run out of. As soon as I had no one to collect it, after a couple of phone calls, and one from my doctors to them, they found it and told me I could go in and get it now. I did ask why they had not given it to my mum and I was told " it had been left on the side", which is worrying as it had my Oramorph in.
And lastly which has really put me in a downward spiral is last September I was referred by the pain team for acupuncture and was told there was a bit of a wait. So I waited, phoned in January and left a message, nobody got back to me. Phoned in middle of February and spoke to a lovely lady who told me, someone had forgotten to put me on the waiting list and I would now not be seen until at least april. The lady said she would speak to the nurses and try and get them to fit me in as I should of been seen within about 8 weeks. Well I am still waiting for her to return my call. Then last week I tried again, the lady I had spoke to ( they think) is now on holiday, but someone else was going to sort it out and ring me back and you guessed it I am still waiting for the call.
I really do not know what I have done to get such horrible treatment from such a large group of people. All I can think of is that I must of done something very bad in a previous life!
I just do not know how to start being positive about anything.
My fibromalgia is getting worse and now my doctors thinks I have some sort of central nervous condition as I keep falling over and my hands don't work so good and I keep dropping things. All of this is making my depression hard to deal with and I am finding keeping on top of housework etc overwelming and cooking a chore. My daughter has been put on a FODMAP diet for health reasons but it is making cooking so very difficult. She can not have gluten, dairy, beans and pulses. She is only allowed certain vegatables ( no onion,garlic,leeks, celery, ) and some vegatable she is only allowed in small doses and the same goes for fruit. And there is what seems like a ton of other foods she is not allowed.
I really wish they was a way for me to snap out of this, even the physiologicist ( think that's the right word) is off sick. You really could not make this up if you tried
Any help to put me back into a more sunny frame of mind would be warmly welcomed
As you can see from the time of this post, sleep is not so good as my hips are really bad so I can't lay on either side and I have never been able to sleep very well on my back.
See what I mean, still finding things to moan about