Interested in this study ?: The Brain... - Fibromyalgia Acti...

Fibromyalgia Action UK

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Interested in this study ?

Mdaisy profile image
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The Brain in Pain study seeks to better understand changes in brain chemistry that might explain the pain in Fibromyalgia and Chronic Fatigue Syndrome. To do this, the study will be using a method of brain scanning that enables us to look at which parts of the brain and which chemicals are active during pain.

The study is based in London and is actively recruiting patients with Fibromyalgia or Chronic Fatigue Syndrome who are NOT currently on ‘centrally acting’ medications (including the following Gabapentin, Pregabalin and antidepressants such as Duloxetine and Amitriptyline) or chronic Opiate treatment. The study will reimburse participants for their time.

If you are interested in taking part, further information can be obtained from Dr Bourke using the following email address : j.bourke@qmul.ac.uk.

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Mdaisy
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Mdaisy profile image
Mdaisy

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TheAuthor profile image
TheAuthor

Thanks Emma, it is a shame as I cannot do this study either! Would have really liked to do this.

Take care

Ken x

Sparklecaz profile image
Sparklecaz

Surely any one diagnosed wouldbe on one or more of these medications ? So therefore it would only be for those not diagnosed but simply in the process?

I would gladly have helped but am on two of the above!

sue32 profile image
sue32

I'm not on any of the drugs listed as they contraindicate with the meds I already take. I would love to take part in this but unfortunately I live in North Wales and I would be unable to travel the distance necessary!! XXX :(

csav73 profile image
csav73

Hi all does anyone no what happens to our test results those of us that did it for for research a year or so ago I'm still waiting to here

in reply to csav73

casav73, Did you ever contact them to ask for your 'results', if any ? You do know it's not for the benefit directly of the volunteers, don't you ? It's an academic project to, hopefully, answer some general questions which may benefit people in the future.

mindful579 profile image
mindful579

I would be very happy to take part, but i am on many of the medication mention in your post. Sorry. :-(

VonnyM profile image
VonnyM

I am on diabetes med and for fibromyalgia/cfs i am taking paroxatine only. I would like to know more about what is involved and where the study is

I am concerned about this study. It would appear to me that volunteers are invited from people diagnosed with either fibromyalgia (which has not even yet been accepted as a medical condition) & non cardiac chest pain (the cause of which has not yet been determined).

I am as eager as anyone to find a more satisfactory analgesic than is presently available , since the withdrawal of coproxamol. BUT are we sure that this is not just another cheap drug  trial by a pharmaceutical company to determine whether the drugs involved in the study can be said to be useful in treatment of these diagnoses ?

As several people have pointed out, it will entail stopping whatever treatment one's GP is presently advising, as they are looking for people who are NOT already taking these types of drugs ! How many people with chronic pain, whatever the cause, will NOT be taking anything for the pain ? It doesn't make sense !

I would caution anyone who is considering to take part in this study to think very carefully about how the study may affect their condition.

My apologies folks, in fact this study is inviting volunteers who have been diagnosed with non-sensitised fibromyalgia, whatever that is, & are excluding non cardiac chest pain sufferers. It is a Wellcom study conducted by neurophysiologists in the Center of Psychiatry & full  details can be found by 'googling' - 'brain in pain study'.

Have you taken part in the study, Mdaisy ?

Are you REALLY sorry you can't take part, 'The Author' ? Remember that you are in a position of authority as an Administrator !

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