Fibromyalgia Action UK
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Burning mouth syndrome?

Since returning from hols 6 weeks ago I have had a really painful burning mouth it had been intermittent but always around if you know what I mean! My lips feel sore and kind of numb and anything with strong flavours like pineapple, curry, wine etc hurt more than blander stuff! Dr said it could bra burning mouth syndrome, I wondered if anyone else had this or heard of it? Thanks Lucy x

8 Replies

Hi Lucy, I had symptoms something like a few weeks back. My rheumatology doc said it was another symptom of fibro but didn't give me anything to help. I tend to stick with the blander foods now. Hope you find something to help.



Thanks for your reply Theresa, have your symptoms gone or do you still have them? Mine seem to flare up for a few days and then settle a bit but never completely go! Lucy


Yea mines the same Lucy, although Fine at the min fingers crossed. I'll keep looking for something to help,so I'll keep you posted.



HiLucy, I get this too. I used to really enjoy eating the curries etc. that Hubby makes, but now I cannnot stand anything too spicy or hot. Wen its bad I think I've got thrush or something. Last night, Hubby made a pork and chicken jerk, which was nice, but Hubby misjudged the seasoning and it was too hot for me to enjoy. I have to keep reminding him that my mouth is sensitive now. My fave curry is korma now. :-(


Hi Lucykris

I am so sorry to read that you have been suffering with such a horrid sensation and I genuinely hope that you can find some resolution and relief to this issue. I have pasted some information below from a patient guide from the NHS Oxford Radcliffe Hospitals Trust regarding this issue:

What is Burning Mouth Syndrome?

This condition is characterized by a burning pain or hot sensation which can be localized to the lips or tongue or more widespread in the mouth. • The sensation can be continuous or intermittent. • It can also be accompanied by other symptoms like dryness, an unpleasant taste, or feelings of numbness. • It can increase with talking, eating hot or spicy foods, and in times of stress. • It can be reduced by some foods or drink, sleep or rest and distraction. In research literature, it is sometimes referred to by other names e.g. glossodynia, glossopyrosis, stomodynia, oral dysaesthesia.

Please see the link below to the PDF of this guide:

Burning Mouth Syndrome Information for patients:\110407burningmouth.pdf

I want to wish you all the best of luck with finding the answers that you so desperately desire and deserve.

All my hopes and dreams for you

Ken x

1 like

Hi Lucy - The pineapple and wine (red especially) as well as some of the ingredients in curries make me think of a histamine intolerance, the symptoms are very wide ranging and can be immediate as well as delayed. Maybe look into that?

A burning or tingling in the mouth and lips can also point to an allergic reaction to something which, if that is the case, might be a good idea to investigate because allergies can worsen over time.

Just two thoughts based on my experiences, I hope you find answers and relief soon!



You poor dear, I've never had that but my tongue is swollen for some reason. Hope you find some answers and can get it taken care of as I know how tender our mouths are and the rest of our bodies with the Fibromyalgia. Hang in there sweetheart!!! Maybe ask your Dr. xxxx Mitzi


Thanks for all your kind comments and info it has been really supportive, just trying to get on with it as does seem to be a bit better but then flares up again so guess will have to try and put up with it as we all do! :(( Lucy


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