Blooming specialists! : I haven't been... - Fibromyalgia Acti...

Fibromyalgia Action UK

59,707 members66,774 posts

Blooming specialists!

trae profile image
trae
13 Replies

I haven't been around for a while due to feeling really ill. I've been back and forth from my gp like a yoyo and sent to various specialists. After being diagnosed in January with fibro and hms my health has been really poor. But I've since been back to rheumatology who now say I have quite a bad case of hms but not fibro - only fibromuscular pain. She's also sending me to a neurologist and a psychiatrist.... feel like telling them to pop me in a box and post me between themselves - surely that would be easier?

Anyway, HI EVERYBODY!! :D

Written by
trae profile image
trae
To view profiles and participate in discussions please or .
13 Replies
ladytelita profile image
ladytelita

Hello trae. Sorry you've been having a rough time. Hope you're on the mend, or at least feeling better.

Oh and can you explain what HMS is? I've never heard of it before.

P.

trae profile image
trae

Thanks ladytelita x hms stands for Hypermobility syndrome. It's a connective tissue disorder where the body produces too much collagen making joints less sturdy and 'hypermobile'. Apparently it can cause similar symptoms to fibromyalgia or even occur together. Thanks for asking, not many people do xx

ladytelita profile image
ladytelita in reply to trae

Thanks. :)

trae profile image
trae in reply to ladytelita

No problem :)

jillylin profile image
jillylin in reply to trae

I'm a fellow HMS er. My GP told me that HMS and FMS go hand in hand. If you have one, you are more than likely going to have the other.

trae profile image
trae

:)

Ginsing profile image
Ginsing

Morning Trae,

You have certainly been going the rounds hope you have started to win now remember there is always someone to chat with on line so try and pop in more often.

Best wishes

Ginny

trae profile image
trae

Thanks gins :)

Good to hear from you again trae, looks like they might be getting you sorted now :)

trae profile image
trae

I really hope so maryD :) thanks :D

Tattyhead53 profile image
Tattyhead53

Hi there if you are on twitter there is a lady called Isobel Knight who knows a lot about HMS. if you want lots of info. Could probably google her too!

trae profile image
trae

Thankyou very much. I'm currently looking into joining the HMSA :) I'll have a looky though xx

jillylin profile image
jillylin in reply to trae

Her book is brilliant. My GP recommended it to me. As a ballet dancer I was pleased to find she also danced.

Not what you're looking for?

You may also like...

Adenomyosis

Hi Fibro friends 😊 Does any 'ladies' in the group suffer with Adenomyosis. I have been recently...

Exercise anyone?

Hi, I have just turned 29 (In June). I was diagnosed with Fibromyalgia in November 2021. I have...

Any one else?

I've started drawing again, A bit rusty still, Helps with the depression, This is what I think...

Does Anyone Ever Feel Like There Body Is Heavy Like Wearing Deep Sea Dive Suit When Walking

Really feeling like I have mentioned above & was wondering if anyone else feels the same in...

Emojis in posts

We have had conversations over the years about the use of images, jokes and also emojis. Just...