First post

I've been on the site for 6 months, shortly after being diagnosed with Fibro. The roller coaster that has occurred in that time has been horrendous. I know now I'm not alone in coping with this pain, but still finding it difficult to cope at times. I've always been active, running around between here and there and making up parts in the time spare. I've been having regular CBT sessions which have helped immensely and now just waiting for appointment for pain management as my GP won't give me a strong painkiller as they are addictive??! I had acupuncture and reflexology yesterday, a birthday gift, which I found very helpful for the lower back pain that never normally eases past 7 (1 being good, 10 I can't walk) . Still taking each day as they come, as pain and mood vary. My husband is super supportive and don't think I could have endured all this without him. I know all are stories are different but the pain remains the same... Excruciating at times, just nagging at times... But essentially always there. Our strongest days are our most painful. Gentle hugs to all and have a peaceful weekend

8 Replies

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  • Well done on your first post. I've just joined this week and feel very much welcomed. yes, this fibro is difficult but it's good to know there's support and storiries to share and it sounds like you have good support at home.

    I've always been very active too and am well known for overdoing it so it's a big shock when you have to slow down and learn how to pace, especially when you feel good and want to do it all again!

    I've always been reluctant to take painkillers and when I do find them ineffective. Your GP is right to say that some are addictive (especially the codeine variety) but there are lots of other options that could work for you so a pain management clinic is a good option. It sounds like the things you've tried already are quite good. Will you be using them again?

    Best wishes, have a good weekend. :)

  • Hello! I hope that you enjoy being one of our forum family.

    You have had some good support so far, I'm pleased for you. Pain management is fantastic as there are a variety of ways they can help. It's purpose is to put you in control of your pain rather than the other way round.

    I look forward to meeting you through other posts. You'll know by now that we can have a good rant or laugh, or get advice from those who have been there before. 🐸

  • Hi! What a lovely gift I've heard the deep tissue massages, that I used to love, can leave you unable to move so my wife has picked up a box full of aromatherapy oils and one of the tables from a car boot but we have yet to use them! I'm lucky to have a very supportive Dr who will give strong painkillers if needed because I am dependent on them like my insulin for my diabeties that does not make me an addict.

    Patrick x

  • cel71, Thanks for sharing and welvome!!!Sorry your in so much pain, hopefully you can find a gp that will get you meds that work.Wishing you the very best.Peck🐤

  • Just like to say welcome to the forum. From reading the stories the majority of us were all very active before fibro developed including myself. I just cannot get used to have my foot more on the brake pedal than on the accelerator. It sounds as though your birthday presents have done you good hope they have a long term effect.

    I am so glad you have a supportive OH as that makes all the difference. Look forward to your future posts.x

  • Hi Cel71, Welcome to the site! I have been doing well pacing myself it took me all week to do my housework lol, one of the best tips so far pace yourself. Take care hope to hear from you in the future. Ann

  • Hi cel71

    I sincerely hope that you are feeling as well as you possibly can be today? Welcome to posting on the forum, and it is wonderful to make your acquaintance. I sincerely hope that you are finding the forum useful, informative and loads of fun!

    I have pasted you a link below to our mother site, FMA UK which hosts loads of useful Fibro information:

    fmauk.org/

    I want to genuinely wish you all the best of luck, and I sincerely hope that you pain management referral goes really well for you. Please take care of yourself.

    All my hopes and dreams for you

    Ken

  • Thank you all so much for your kind words and support. It means so very much xx

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