I was diagnosed with fibro/myofacia this last year it Has gotten really bad. The doc Says because I'm getting older. This flare I'm in has

[bwaite]

Not gotten better and it's 2

months anyone else have the

Same experience?

[TheAuthor]

Hi bwaite

I am so sorry to read that your flare up has not resided yet, and I genuinely hope that you can find some resolution and relief to the issue. I was wondering if your GP had given you any new medications because of how bad your flare is? This sort of information is always handy for members to know!

I have pasted you a web link to NICE and there are many links on this page to myofascial trigger points, so I hope that you find this useful:

evidence.nhs.uk/search?q=my...

I have also pasted you the FibroAction page for symptoms, and this has a write up on myofascial pains as well:

fibroaction.org/Pages/What-...

I want to wish you all the best of luck with getting some good useful answers to your question.

All my hopes and dreams for you

Ken

[bwaite in reply to TheAuthor]

Thank you ken you our a very considerate person. He's just up my Butrans from

10 to 20mg. Just waiting till

my appt at pain clinic. But

I will look up the info you've

Given me.

[bwaite in reply to TheAuthor]

I am extremely interested in the paranormal and if I'm correct that's your expertise? Would love to

Chat if this is so.

[TheAuthor in reply to bwaite]

Hi bwaite

Please feel free to PM me anytime you wish. As soon as I get online I will always reply.

Take care

Ken

[bwaite]

Ken I see you are an author

what material have you written?

[TheAuthor in reply to bwaite]

Hi bwaite

I am a parapsychologist, but under the guidelines of the forum I am not allowed to self advertise!

[bwaite in reply to TheAuthor]

We'll that stinks thank you for the advice already given.

[fenbadger in reply to TheAuthor]

Didn't see that one coming

[bwaite in reply to fenbadger]

Right!!! Least we're not alone.

[TheAuthor in reply to fenbadger]

Hey? What? Who? Come again?

[bwaite in reply to TheAuthor]

Sorry sent wrong email. Bad nite

[fenbadger in reply to bwaite]

That's ok. If you wish you can edit or delete your own work. Click on the <edit> button to the right below your work (Where it says <report> for everyone else) and it offers you edit or delete.

[Ginsing in reply to fenbadger]

para diddles e dum de dum ?

[TheAuthor in reply to Ginsing]

A Spanish train!

Si el tren es un velocista, entonces hará que esto suena!

[fenbadger in reply to TheAuthor]

Diddly dee diddly dum diddly dee diddly dum

[TheAuthor in reply to fenbadger]

hehehehe!

[aura2]

Yes beaite think this is all part of fibro really hope your flare lifts soon lots of rest needed . I am having Myofascia release massage it is really ihelping with the pain it makes it more bareable .anyone else tried this .

[bwaite in reply to aura2]

Thank you hopefully when I go to the pain clinic they'll do this.

[mitziblue]

Sweetheart have you seen a pain specialist? If not, you should. It the only thing that keeps me going, Best of luck to you!!!!

[bwaite]

Thank mizblue that's comforting

I am so depressed I've been on

the coach for a week know. I

really help they can help.

[beckyglen]

Hi Bwaite,

I'm really sorry that you are having such a bad flare. I have also been having my worst flare yet for the last 2 months. I'm not sure that it can be just cos your getting older as your doc says because I am only 29.

There could be a number of different triggers that have caused your flare. I have found that trying to do too much for long periods of time and not giving myself time to rest is my biggest problem. That and getting stressed about things - I am in my third and final year as a student nurse and have had to go on health interruption until I am well enough to continue.

I know it is so hard when you can't see any signs of the flare calming down! All I can suggest is that you go and have a chat with your doc to see if they can do something - change meds or referral to pain clinic. Also just look after yourself and try to rest and reduce stress.

I really hope you get some relief soon!

Gentle hugs to you

Becky xx

[beckyglen]

Also they might change your medication when you go to the pain clinic. I was on Butrans and when at the pain clinic they said to stop that right away because it does not work for fibro pain. I hope that your appt is soon

Xx

[bwaite in reply to beckyglen]

The Butrans seems to help a little. What other pain med.

Did they put you on at the

Pain clinic?

[beckyglen in reply to bwaite]

I have previously been on tramadol which gave me insomnia, gabapentin which made me really angry all the time, amitriptyline which made me really drowsy the next day, duloxetine and the butrans patch. I am currently taking pregabalin, co codamol 30/500 and nortriptyline. The pain clinic told me to stop using the patch and to stop taking duloxetine and replace that with the nortriptyline.

They also put me forward for the Glasgow pain management program. This is a 12 week program where you go once a week for 2.5 hours to a small group class. I have not started it yet but I have heard it is helpful.

I hope you find the pain clinic helpful

Xx

[bwaite]

Thank you beckyglyn any input

Is helpful.

[bwaite]

I will thank you xxx

[bwaite]

Thank you xxx

[bwaite]

Sorry sent wrong email not

Having a good nite.

[bwaite]

Becky what is cotrmdole?