Fibromyalgia/neuropathy

[EllieNPa]

I tried Lyricia, amptripoline, gabapentin etc side effects were terrible, almost got me fired making alot of mistakes at work. I think the drugs are NOT good,

[Ian123]

If you can not tolerate those drugs trying LDN (Low Dose Naltrexone) after discussing it with your doctor might be an option worth pursuing, looking for the least worst side effects when most come with some drawback is a long drawn out process sadly.

[TheAuthor]

Hi EllieNPa

I am so sorry to read that you cannot tolerate these medications, and I genuinely hope that you can find some resolution and relief to this issue.

I always think that we are unique individuals and that we all suffer our Fibro differently and react to our medications differently also. I have pasted you the FibroAction link for 'Fibro Treatments'

fibroaction.org/Pages/How-I...

I want to wish you all the best of luck with finding an answer to your problem with medications.

Ken

[Reykua]

So True EllieNPa,

It got so bad in the initial stages that I had to take quite a bit of time off and after attending the Pain Clinic, realised that the only way forward would be to change my career to something less 'risky' for want of another expression.

I took part-time, less stressful work and eventually took redundancy last year as I found myself still struggling to manage all my conditions, symptoms, meds and terrible side effects.

I've recently started to feel like I'm managing my spoons a little better so I'm hoping to go back to another part time role after the summer.

Do Give yourself time, try to be patient with yourself, research and experiment a bit with different meds and therapies and honestly undertake a 'Risk Assessment' of your ability to carry out your current job role. For me, I found the Fibro Fog and side effects of the meds extremely detrimental and greatly impacted on my ability to function in a highly charged, stressful environment - especially in relation to working with vulnerable children and families.

Wishing you all the very best of health.

[teddybear7]

Hi I am self regulating too. Antis don't do it so lifestyle change it is. It's taking a lot of trial & error & learning the things that trigger and being strong enough to say no. If I do that tomorrow I will be bad. Etc but I'm getting there and still have my Whits about me. Love my hot water bottle & heat pad. Never a day without them. Xx

[timj53]

It is not the side effects that make your mistakes - Fibromyalgia is the culprit. I was diagnosed 9 years ago and stilll forget simple things and important ones. Fibro fog is worse if you are in employment. I was lucky to be able to take early retirement.

Tim

[avarose]

I agree with you, I take only ibrobrufen or co-codomal occasionally. I manage my pain by swimming in a warm pool and a hot jacuzzi, a local hotel charges me only £20 month so I go nearly every day.

Also try to pace myself,for instance, I am not leaving the house today as I qm feeling burnt out , been too busy so today am trying to have a quiet day.

[Hidden]

There is savella and topamax, there are combo drugs in very low doses that work very well. I am trying out topamax right now. I am up to 2 pills per day of that. I had to start out taking tiny bites because when I took a whole pill I got so dizzy and winded. The tiny bites and staying on one pill for 2 weeks really helped me get it going. Well on two pills working up to three as my top dose because I am light weight it's working better than I thought ... I thought lyrica was the only one for me but it gave me swollen ankles so I can't do that one anymore my doctor said.

The downfall of topamax is that you can end up losing a lot of weight unintentionally. Most people do and for some, they can't afford to do it. It's the Phen in the old diet drug phen- fen.. the PHEN was safe, just not combined with the other half..

so it helps with back pain ..

but that PN is a killer though.. breakthrough pain is like having a steel boot on with just my ice cold bone shoved in it.. my skin feels like a loose boot of steel... and the heaviness of the foot.. jeez... to feel a cold foot touch my leg where it's not numb while in my bed is spooky.. its creepy. I hate the feeling.