fatigue and pain and brain fog are my main daily symptoms I live with but the last few days they've gotten worse to the point yesterday that I managed to walk my dogs at 6am; rather enjoyed it as no one else around and sun was shining and air was cold (just how I like it) came home and done washing and fed ginnie. then all of a sudden I had run out of spoons, my whole body felt like lead and I literally slept away easter sunday!!!!!!
much to the annoyance of my husband and son. they couldn't believe I could be SO tired! so they were all huffy and moany on the occaisions I woke for a drink. ive woken with my usual pounding headache and dizziness and my home looks like a tornado's been through it! why cant they just tidy up behind them selves? grrrr! soz, need to whinge.
they are expecting to go somewhere today / do something and im feeling very guilty as im going to use my spoons up quickly as im still feeling like im drugged on sleeping pills?? my speech is slurred and my thought process is slower. I cant let them down again,do you too feel guilty when everyone around you wants a normal life and have some fun and our bodies let us down?
to top all my usual daily rubbish that lupus and fibro give me im also worried im about to loose my job as the company i work is in massive debt and rumours of shop closures are rife. who would want me? im a knackered work horse and cannot claim benefits as my hubbys wages are ment to be plenty to live on!.......can be if I don't eat,use electric, use water and just pay rent and council tax be could survive. one of my friends has just died of cancer and ive lost 3 ginea pigs this month from old age sorry, im really fed up xxxx