Exhausted but can't sleep............... - Fibromyalgia Acti...

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Exhausted but can't sleep...............I'm dispearing!!!

Lizzyear profile image
17 Replies

Hi All,

So fed up, so tired, but my eyes and brain are WIDE awake!!

Have tried everything. I'm exhausted with the pain and fatigue.

Anyone any good tips?

Thanks.

X

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Lizzyear profile image
Lizzyear
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17 Replies
TheAuthor profile image
TheAuthor

Hi Lizzyear

I am so sorry to read that you are experiencing sleep problems at this time, and I genuinely hope that you can find some resolution and relief to this issue. I have pasted you a couple of links from NHS Choices related to coping and treating sleep problems, so I really hope that you find them useful:

nhs.uk/Conditions/Insomnia/...

nhs.uk/Livewell/sleep/Pages...

Me giving advice on sleep issues is a quite unbelievable as I have been an insomniac for most of my adult life! As I am self employed and able to choose my own deadlines and working hours, I tend to just sleep whenever I cannot keep my eyes open any longer.

I really understand how debilitating and soul destroying it can be however, and you have my utmost sympathies with your problem. Since I have been like this for as long as I can remember I think I am use to it in some way?

If this continues for a time, I would definitely discuss the situation with your GP and see what they can do to assist you on the matter?

All my hopes and dreams for you

Ken x

Lizzyear profile image
Lizzyear

Thank you for your reply Ken.

Hope you get some sleep too soon:-))

sophie22 profile image
sophie22

Hi Lizzyear,

Hope you manage to get some sleep soon, I totally understand what you are saying, its exhausting when you are tired but the body(in my case) won't be still or quite of pain for long enough to sleep. I have been awake most of the night having overdone it with family all weekend, it was worth it though I enjoyed having them around. I usually drop with exhaustion in the end, at some silly time, usually when out or in the middle of the afternoon. Daughter took me shopping last week, just for an hour, I could not keep my eyes open half way round the shop and fell asleep as soon as we got back in the car. Not good! Sending you gentle hugs and healing light.xxxxxx

Lizzyear profile image
Lizzyear in reply tosophie22

Hi Sophie22,

Thank you for your reply. Yep, sometimes it's just worth doing something, and to heck with the pain payback tomorrow! Loved the bit about nearly falling asleep shopping! Take care. X

miss_boo profile image
miss_boo

I'm in exactly the same boat. I go to bed at 8, take 225mg pregabalin, 120mg duloxatine and tramadol...and i lie awake til at leat 6am. Then sleep til 9. If i manage to stay awake all day the same will still happen the following night. Ive tried everything in the book. I just cant switch off. All my g.p says is that i should go exercise in the fresh air and tire myself out!! Joke!! I had amyltriptaline (bad spelling ) for 6 months but i was ina wierd sleep zone, sort of awake/sleep and kept sleep walking. I kept filling a glass with water and lieing it in bed. The first time i did it my husband thought he had wet himself lol...he wouldnt get out of bed because his boxers were wet. Haha x

DonnaldIW profile image
DonnaldIW in reply tomiss_boo

Hi, I find Tramadol gives me insomnia unless I take it first thing in the morning x

Lizzyear profile image
Lizzyear in reply toDonnaldIW

Thank you for your reply Donnaldlw. Didn't know tramadol could give insomnia, so thanks, definitely worth a thought :-))

Lizzyear profile image
Lizzyear in reply tomiss_boo

Thank you miss-boo for your reply. Love the bit about do more exercise!! Oh I would if I could. I can't walk very far at all and use a mobility scooter to get around. We really do have to keep a sense of humour. Sometimes you want to tell the professionals............'have you actually heard anything I have been saying!!!' :-)

Hope you are not awake too much tonight :-) x

miss_boo profile image
miss_boo in reply toLizzyear

I know...im dreadful these days. I shake and collapse, scarey. When i went to see my rhumatolagist last year he told me off for gaining 6pounds, told me to buy a book for £4.99 off Amazon called how to get fit in ten weeks. Then went on to tell me that people like me cant go on gaining weight and not exercising, as the nhs could not afford to carry us. Cheeky bog-rat...i never went back again lol. They need to live in our bodies for one week and see what we have to put ip with. Xx

lolly_mitchell profile image
lolly_mitchell in reply tomiss_boo

this is dreadful! im sorry you went through this im obese and have been trying to lose but my rheum told me to stop for now as ive other stuff im worrying about too. tbh when im actually on the wagon pointing meal etc kind of keep my mind off the pain for a tiny while x

Ginsing profile image
Ginsing

Morning Tired one,

I had an idea it may help a bit who knows.

I moved my duloxetine to the morning as I found they made me stay awake.

So step one try that take it in the morning.

Step two change your routine you say you go to bed at 8,00 why - try staying till 9,oo at least then to get ready for bed take your time go slowly and gently relax yourself.

Settle into bed and turn off the light.

Now those glorious bed time stories that you tell yourself you Know the kind we dont talk about. STop worrying about going to sleep

See you tomorrow

:D xxgins

Lizzyear profile image
Lizzyear in reply toGinsing

Hi gins,

Thank you for your reply. I don't actually take duloxetine. I purposely take the Venlafaxine in the morning otherwise I really am awake all night.

Thank you for your suggestions, good idea about the magnesium too.

Hope you are not in too much pain. Take care. X

Cookie72 profile image
Cookie72

Morning lizzyear, I had that trouble for years and I mean years 46 yrs to be exact after my son was born bein pregnant with him made my fibro and spondylosis take a real turn for the worse, I would only get roughly two hours sleep and that was on and off, ....about six months ago, I decided to juggle my meds about and try different ways of taking them, between 5.30 & 6 pm I take my omeprazol for my Barratts Osophegus and just one tramadol, then between 8.00 & 8.30 I take my last gabapentin 300mg, (which is the same family as pregbalin, ) with that I take a black garlic tablet and a magnesium+B tablet both which I got from Healthspan on line, I was told magnesium would help me, then at 10.30 to 11 pm I take another tramadol only one each time so that it spreads it out but you can take another in a shorter period of time I'm suppose to take two at a time but that last dose I split, the way I have done it seems to help, there are nights when I have really bad sleeping, but mostly I will get at least 3hrs before wake up again, on the odd occasion I have gone five hours, who knows you may go more, what pain killers or meds are you on, ...look forward to you post, gentle hugs....Dee xx

Lizzyear profile image
Lizzyear in reply toCookie72

Hi Cookie 72,

Thank you for your reply.

I take 75g tablet of venlafaxine, 3 x 300g Gaberpentin 2 x 500g Paracetamol, 10g tablet Ceritizine and Tramadol as required.

Then miday I take 3 x 300g tablets of Gaberpentin.

At around 7.30pm I take 3 x 300g Gaberpentin, 4 x 10g tablets of Nortriptoleyne, paracetamol and Tramadol as required.

There doesn't seem much of the day left to juggle them:-))

Going in for a gastroscopy and colonoscopy tomorrow, so no peace for me at the mo, as still having to visit the bathroom!

By the way, love the picture of your Scottie dog :-)). I have a cockerpoo and she is absolutely nutty, but adorable!

Hope you are not in too much pain. Take care. X

Cookie72 profile image
Cookie72 in reply toLizzyear

Morning lizzyear , could you take a tramadol with your eve meds, then another tramadol as you lay down to try to sleep, but do try the magnesium and black garlic app we need magnesium and the best time to take it is eve, also we app need a good multivitamin which should be taken tea time as our body absorbs it better over night....when you say 3 x 300 gaba is that 900 mg gaba.....hope you get on okay at the Hosp be thinking of you.....I have an app this morn at 11.15 for the oral dept to have a lump removed from inside my right cheek.... The little Westie dog is my darling Sophie who died last sept she was very sick and 12yrs old a month later we lost the Ben the boxer he was 11 yrs and then just after Christmas we lost Lucy another Westie she was 13yrs the eldest that's the trouble when you have three dogs very close in age, very heart breaking, we now have a rescue pup 7months old from Battersea, staffie cross, I like the cockerpoo's you take care have a good day...sending you gentle hugs and a handful of sunshine...Dee xxx

miss_boo profile image
miss_boo

People say not to worry about not sleeping but it does worry u because u know ur gonna feel dreadful the next day, more painful, sick, i get really shakey and my muscle spasm's get much worse. Its a difficult one.

My husband could not sleep when he had to take tramadol, he kept wanting to tidy up too, i never have that problem lol....but tramadol makes me really tired x ?

Libbylou profile image
Libbylou

I am on 10mg of amyiltriptalene and I find it really helps. I haven't tried tramadol. See your doctor, there is nothing worse than not being able to sleep someone suggested having a walk, I replied have you tried walking with fibro xx take care xx

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