If you have fibro and cfs can your fi... - Fibromyalgia Acti...

Fibromyalgia Action UK

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If you have fibro and cfs can your fibro go into remission or can you cfs go into remmission like me people get slowly better and even

kilts profile image
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Recover. ???thank you for been able to get answers to all the rubbish that goes in our heads

Thanks take care xxx

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kilts
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Mdaisy profile image
Mdaisy

Dear Kilts,

Here is a post that is about your very question.

healthunlocked.com/fibroact...

i have personally found I seem to go up and down, do all the hard word of pacing, exercise tolerance, medications , gentle exercise, therapies etc, basically a combined approach to have a couple of years of not normal 'healthy' person life but an adapted version. A quality of life that wasn't too bad considering having Fibro but better than not having those 2 years :) I have recently gone down again but I'm determined and positive I will get there again !

I think we are all different and it depends what works for us. I personally think learning about the condition & yourself, finding medications that work for you, a way to manage your stress levels and finding the ideal combination for you is the start. It is difficult, very difficult there's no denying and some people have other conditions they are battling with but some people can achieve an optimum level of health for them.

When I first started volunteering for FibroAction I used to 'say people suffering with Fibro' and Lindsey Middlemiss, founder of FiboAction corrected me and said 'you should say people living with Fibro as not all people in the UK are suffering as some people have adapted their life to manage their symptoms as best they can.'

You may find this link helpful which talks about listening to your body, you may find the whole 'Expert Patient Series' of interest too

fibroaction.org/Articles/Be...

Hope this helps

Emma :)

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