Morning to everyone , since last sept when I was diagnosed I have become worse , in everyway , its effected my bladder , eyes , and iam haveing many flares and they knock me off my feet ,.
iam having trouble with my legs and seen the doctor last week , she said its probably rls but I have to have full bloods done again on friday to make sure nothing else is going on .it just never seems to end .
And christmas well , I shoild be looking forward to it , just sometimes feel over whelmed with it all , big hugs to everyone today ! Angie xxxx
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angib53
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Hi sweetie completely understand I too am having the same I had an MRI scan to rule out any other illness as if what I have isn't bad enough luckily I don't have MS but my Fibromyalgia and Cervical Spondylosis has got worse I am lying in bed at the moment typing this up I am having a flare up I just feel really wiped out. I have restless leg syndrome and DISH! I hurt in places I didn't before and if I ever venture out I need a crutch to help with my balance because I have weakness in my legs and also I have the right main artery in my neck pressing against the vertebraes and my vision is not good at times as I have a blurred disc at the back of my eyes so need to be careful on the headache side which I get a lot of and I have had no money since June when my ESA ran out! see there I go on my little soap box sorry hon its just one of those days. I need to go and look at my grateful jar that will perk me up I hope you feel better very soon sending gentle fluffy hugs xx xx
Good morning Angie,sorry to hear that you are suffering so much.If it is RLS then yikes who is a member on here has that,so maybe you could try messaging her to ask about it.It really does get you down when there are a lot of areas that are all in flare at the same time doesn't it I really can emphathise as Iam still like it myself with everything in flare.My depression is bad and I find it hard to fight it.Funny enough I was thinking of Xmas this morning as I normally look forward to it but in a way Iam dreading all the shopping as getting out is so hard,will probanly try to get some of it online I think.I was wondering why I hadn't heard from you Which antidepressant are you taking? I have now been re-referred to mental health so have got to wait to see them till I can change antidepressant.Just want you to know that Iam thinking of you and will be sending lots of fluffy healing cuddles your way xxx
hi hunni xx ive not been on for a little while as these flares are getting me down , but needed to vent today x
I wished we lived nearer hun so I could help you to , I know this can deflate you , I tried citalopram but I had bad side effects so ive upped my nortriptyline , its helped me to sleep a little better .
iam still taking lycria aswell . I will ask my pain doc if I can see a councellor , and maybe try acupuncture , or morphine patches , ill try anything , as you can see lol.
hun do your shopping online I did last year and it really helps x just going to get my heat pads and cover up , you take care to and big hugs for you and your son xxxxxxx
Iam going to try the CBT counselling through my g.p again and starting a stress and mood management course this week.I was thinking of try acupuncture myself but privately.I tried Bowen therapy but it no longer works.Thank you for the hugs xxx
those flare-ups are the absolute pits. I have RLS and take ropinerol for it, it really helps me. I am also currently working with the clinical psychologist from the pain management clinic and that seems to also be helping. I was very surprised to find out, when I had my eyes tested, that Fibro can affect our vision. We seem to find all kind of issues coming out of the wood work
Hi jillylin my optician told me fibro makes your eyes very dry,i use lubricating eye spray about four times a day,i also wear glasses for tv and reading.
hi jilly x I will be discussing seeing someone from the psychologist side of things on Friday at the pain clinic , sometimes I find things to hard , but then somehow find the strength again to carry on , looking at my family gives me the strength too .
I hope he gives me something for my legs as they never stop , 24-7 they drive me mad.
I didn't have to wear glasses , but last year I went to have my eyes checked and I now wear glasses all the time ty fibro !!
Hithere broadband, unfortunately this fibro affect nearly every part of our body, in fact for the life of me I can't think of a part it doesn't affect and it's a bummer, it's affecting my bladder very badly and has done for some time now, and every now n then it effect my bowel as well as the ibs, and that can be embarrassing, ....I alo get restless legs syndrome hitch use to drive me bonkers, I now take magnesium+D and. The magnesium does help, I still get the restless legs now n then, but now where near as bad, it was recommended that I took thm by my doctor, I take them a couple of hours before I go to bed with black garlic tablets, ...she also recommended that I take Q10 for extra energy....hop this helps....sending you gentle hugs....Dee xx
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luckily I don't have MS but my Fibromyalgia and Cervical Spondylosis has got worse 
I hope you feel better very soon sending gentle fluffy hugs xx 
Length of Flares
Hydro pool or not 
not happy FITS/PAIN
Flares
